Patient and family perspectives on respect and dignity in the intensive care unit

Narrative Inquiry in Bioethics
Mary Catherine BeachGail Geller

Abstract

Respect and dignity are central to moral life, and have a particular importance in health care settings such as the intensive care unit (ICU). We conducted 15 semistructured interviews with 21 participants during an ICU admission to explore the definition of, and specific behaviors that demonstrate, respect and dignity during treatment in the ICU. We transcribed interviews and conducted thematic qualitative analysis. Seven themes emerged that focused on what it means to be treated with respect and/or dignity: treated as a person; Golden Rule; acknowledgement; treated as family/friend; treated as an individual; treated as important/valuable; and treated as equal. Participants described particular behaviors or actions that were considered related to demonstrating treatment with respect and dignity: listening; honesty/giving information; attention to body/modesty/appearance; caring/bedside manner; patient and family as an information source; attention to pain; and responsiveness. These behaviors provide a framework for improving experiences with care in the ICU.

Citations

Mar 18, 2016·Journal of the American Medical Informatics Association : JAMIA·Samuel M BrownUNKNOWN Privacy, Access, and Engagement Task Force of the Libretto Consortium of the Gordon and Betty Moore Foundation
Nov 2, 2016·Nursing Research·Lissi HansenMichael C Leo
Feb 28, 2018·Critical Care Medicine·Mary Catherine BeachGail Geller
Jan 23, 2018·American Journal of Respiratory and Critical Care Medicine·Samuel M BrownMichael D Howell
Sep 24, 2016·Critical Care Medicine·Joseph A CarreseJeremy Sugarman
Oct 6, 2017·Journal of Advanced Nursing·Nurfika Asmaningrum, Yun-Fang Tsai
Apr 2, 2021·Hospital Topics·Camellia TorabizadehMarzieh Momennasab
Aug 31, 2021·Intensive & Critical Care Nursing : the Official Journal of the British Association of Critical Care Nurses·L KarlssonC Elmqvist

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