Patient and Physician Perspectives on MSdialog, an Electronic PRO Diary in Multiple Sclerosis

The Patient
Peter GreinerEmma Imison

Abstract

MSdialog, a web- and mobile-based software application, captures data on self-administration of subcutaneous interferon β-1a, clinical outcomes, and patient-reported outcomes in patients with multiple sclerosis outside the clinic. Patient and healthcare professional reactions to MSdialog were surveyed; participants rated benefits of MSdialog detailed in an explanatory video. A 6-week pilot study of patients with multiple sclerosis then assessed MSdialog usability. After participating in a training teleconference, patients completed weekly health reports via MSdialog, plus two usability surveys (weeks 3 and 6) and an exploratory follow-up telephone interview. Seventy-six patients, 92 neurologists and 40 multiple sclerosis nurses completed the MSdialog benefits survey. Highly motivating benefits for patients included sharing information with healthcare providers and capturing patient-reported outcomes data; healthcare providers were highly motivated by data availability on patient-reported outcomes and adherence. Thirty-nine of 42 enrolled patients completed the pilot study. Overall, 87% of patients stated that completion of patient-reported outcomes with MSdialog fitted in "fairly well" to "extremely well" with their weekly rout...Continue Reading

References

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Citations

Sep 11, 2019·Multiple Sclerosis : Clinical and Laboratory Research·Giampaolo BrichettoAndrea Tacchino
Aug 5, 2020·Multiple Sclerosis : Clinical and Laboratory Research·Sarah AlexanderJeremy Chataway
Nov 7, 2019·The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses·Pamela NewlandFlorian P Thomas
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Jul 17, 2020·Multiple Sclerosis : Clinical and Laboratory Research·Giampaolo Brichetto
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Oct 13, 2021·Telemedicine Journal and E-health : the Official Journal of the American Telemedicine Association·Ingrid Oakley-GirvanJessey Schwartz Ouillon

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Software Mentioned

myBETAapp
MSdialog
Tecficare

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