Patient-centered Outcomes Research in Pulmonary, Critical Care, and Sleep Medicine. An Official American Thoracic Society Workshop Report

Annals of the American Thoracic Society
Laura C FeemsterAmerican Thoracic Society Behavioral Sciences and Health Services Research Assembly and Nursing Assembly

Abstract

Patient-centered outcomes research (PCOR) represents a paradigm shift in research methods aimed to create the body of evidence that supports clinical practice and informs health care decisions. PCOR integrates patients and other key stakeholders including family members, policy makers, clinicians, and patient advocates and advocacy groups as research partners throughout all stages of the research process. The importance of PCOR has received increased recognition, yet there is little evidence available to help guide researchers interested in the design and conduct of PCOR. In May 2014, we convened a workshop to identify key issues related to designing, conducting, and disseminating findings from PCOR studies. Workshop participants included a diverse group of patients, patient advocates, clinicians (physicians, nurses, psychologists, and advanced practice providers), researchers, administrators, and funders within and beyond the pulmonary, critical care, and sleep medicine communities. Participants identified important issues and considerations to address when undertaking PCOR. In this report, we summarize the results of this workshop to inform members of the pulmonary, sleep, and critical care community interested in participati...Continue Reading

References

Dec 24, 2005·Critical Care Medicine·Jill I CameronAngela M Cheung
Sep 8, 2009·American Journal of Respiratory and Critical Care Medicine·Holger J SchünemannUNKNOWN ATS Ethics and Conflict of Interest Committee and the Documents Development and Implementation Committee
Oct 14, 2011·The New England Journal of Medicine·A Eugene Washington, Steven H Lipstein
Nov 15, 2011·Critical Care Medicine·Judy E DavidsonO Joseph Bienvenu
Apr 25, 2012·Journal of General Internal Medicine·Thomas W ConcannonLaurel K Leslie
Nov 17, 2012·American Journal of Respiratory and Critical Care Medicine·Jerry A KrishnanUNKNOWN COPD Outcomes-based Network for Clinical Effectiveness and Research Translation
Dec 21, 2012·Proceedings of the American Thoracic Society·Marcia KelsonUNKNOWN ATS/ERS Ad Hoc Committee on Integrating and Coordinating Efforts in COPD Guideline Development
Jun 19, 2013·Journal of Clinical Sleep Medicine : JCSM : Official Publication of the American Academy of Sleep Medicine·Sairam ParthasarathySamuel Kuna
Oct 29, 2013·American Journal of Respiratory and Critical Care Medicine·Shannon S CarsonUNKNOWN American Thoracic Society Comparative Effectiveness Research Working Group
Feb 25, 2014·Annals of the American Thoracic Society·Susan J BartlettR Andrew McIvor
Feb 27, 2014·BMC Health Services Research·Juan Pablo DomecqMohammad Hassan Murad
May 14, 2014·Journal of the American Medical Informatics Association : JAMIA·Sarah E DaughertyRachael Fleurence
Jun 5, 2014·Journal of General Internal Medicine·Thomas W ConcannonJoseph Lau
Jul 16, 2014·Annals of Internal Medicine·Rachael L FleurenceJoseph V Selby
Nov 8, 2014·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Christina L RushKristi D Graves
Apr 16, 2015·Critical Care Medicine·Erin K Kross
Sep 29, 2015·Progress in Community Health Partnerships : Research, Education, and Action·Margaret DarlingLarisa Caicedo
Feb 26, 2016·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Clifton O BinghamRajeev K Sabharwal
May 7, 2016·AACN Advanced Critical Care·Mark E MikkelsenTheodore J Iwashyna
Jun 7, 2016·Journal of Pain and Symptom Management·Shoaib FakhriJ Randall Curtis
Mar 16, 2017·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·John R KirwanSusan J Bartlett
May 14, 2017·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Laura ForsytheLori Frank

❮ Previous
Next ❯

Citations

Oct 18, 2019·Intensive Care Medicine·Ignacio Martin-LoechesUNKNOWN TAVeM study Group
May 1, 2021·Best Practice & Research. Clinical Rheumatology·Niti Goel
Jul 21, 2021·American Journal of Respiratory and Critical Care Medicine·Kerri I AronsonJeffrey J Swigris

❮ Previous
Next ❯

Software Mentioned

PCOR

Related Concepts

Related Feeds

American Thoracic Association Journals

Discover the latest respiratory research published by the journals from the American Thoracic Society.

Related Papers

American Journal of Respiratory and Critical Care Medicine
Shannon S CarsonAmerican Thoracic Society Comparative Effectiveness Research Working Group
Proceedings of the American Thoracic Society
Kent E PinkertonAmerican Thoracic Society Environmental Health Policy Committee
Academic Emergency Medicine : Official Journal of the Society for Academic Emergency Medicine
Mary Pat McKayKarin Rhodes
© 2022 Meta ULC. All rights reserved