Patient control and end-of-life care part I: the advanced practice nurse perspective

Oncology Nursing Forum
Deborah L VolkerJoy H Penticuff

Abstract

To explore understanding of preferences of adult patients with cancer for control in the context of end-of-life care and to explore strategies that oncology advanced practice nurses (APNs) use to assist patients in achieving personal control at the end of life. Descriptive, naturalistic using Denzin's model of interpretive interactionism. A variety of settings throughout the state of Texas. 9 oncology APNs. Participants were recruited via a mailed invitation to APN members of the Oncology Nursing Society who resided in Texas. Interviews were recorded on audiotape and analyzed via Denzin's interpretive process of data analysis. Patient control. APNs' descriptions of patient preferences for control at the end of life included engagement with living, turning the corner, comfort and dignity, and control over the dying process. APN roles included presenting bad news in a context of choices, managing physical care and emotional needs, and facilitating care services and systems. Patient desire for control manifests in a wide variety of actions and desires to live fully and remain actively involved in personal decision making in the context of an advanced cancer diagnosis. APNs play a pivotal role in determining and facilitating patien...Continue Reading

References

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Citations

Apr 25, 2006·Journal of Palliative Medicine·Judith A PaiceAnne Rhome
Jun 10, 2009·The Gerontologist·Tracy A SchroepferMelinda Kavanaugh
Nov 6, 2007·Clinical Nurse Specialist CNS·Deborah L Volker, Michael Limerick
Jul 8, 2011·Qualitative Health Research·Deborah L Volker, Hung-Lan Wu
Apr 3, 2014·Iranian Red Crescent Medical Journal·Fatemeh EstebsariMarzieh Latifi
Jan 25, 2006·International nursing review·A Z DoorenbosNagesh N Borse
Feb 21, 2006·Nursing Outlook·Judith A PaiceAnne Rhome
Nov 21, 2007·Oncology Nursing Forum·Amy CoenenSarah A Wilson
Dec 31, 2005·Clinical Journal of Oncology Nursing·Heather Paprstein
Jul 22, 2006·Oncology Nursing Forum·Renee Royak-SchalerDeborah Scott
Jan 29, 2011·Palliative Medicine·Emmanuelle BélangerDanielle Groleau
Feb 9, 2019·Journal of Advanced Nursing·Mary Ann MeekerMary Ann Jezewski
Jan 22, 2005·Oncology Nursing Forum·Karen S DunnElizabeth Stephens
May 15, 2020·Holistic Nursing Practice·Zohreh GhezelsefliEesa Mohammadi
Oct 31, 2008·International Journal of Palliative Nursing·Lesley CooperJulie Watson
Dec 14, 2019·Nursing Research·Tiffany N RicksTracie Harrison
May 28, 2020·International Journal of Environmental Research and Public Health·Wun-Yu YouWei-Fen Ma

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