Patient participation during and after a self-management programme in primary healthcare - The experience of patients with chronic obstructive pulmonary disease or chronic heart failure

Patient Education and Counseling
Kristina LuhrAnn Catrine Eldh

Abstract

Patient participation is facilitated by patients' ability to take responsibility for and engage in health issues. Yet, there is limited research as to the promotion of these aspects of patient participation in long-term healthcare interactions. This paper describes patient participation as experienced by patients with chronic obstructive pulmonary disease (COPD) or chronic heart failure (CHF); the aim was to describe if and how a self-management programme in primary healthcare influenced patient participation. Patients who had participated in a self-management programme were interviewed in nine focus groups (36 patients). Data was analysed using qualitative content analysis. Patients described equality in personal interactions, opportunities to share and discuss, and a willingness to share and learn to facilitate patient participation in a self-management programme. Consequently, patient participation was promoted by a match between the individuals' personal traits and the context. Features facilitating patient participation by means of sharing and assimilating knowledge and insights should be included in self-management programmes and in the care for patients with COPD and CHF. A self-management programme can complement regula...Continue Reading

Citations

Oct 3, 2018·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Kristina LuhrMarie Holmefur
Jan 18, 2019·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Axel WolfAndreas Fors
Mar 28, 2019·Journal of Evaluation in Clinical Practice·Ann Catrine Eldh
Sep 29, 2019·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Liselott ÅrestedtAnn Catrine Eldh
May 10, 2020·Journal of Pediatric Psychology·Samantha A CarreonRachel Neff Greenley
Jul 23, 2020·Worldviews on Evidence-based Nursing·Liselott ÅrestedtAnn Catrine Eldh
Jul 31, 2020·BMC Health Services Research·Ann Catrine EldhMarika Wenemark
Jun 1, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Rikard WärdigAnn Catrine Eldh
Jul 12, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Leila PaukkonenHelvi Kyngäs
Aug 3, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Caroline MartinssonAnn Catrine Eldh
Oct 26, 2021·The Cochrane Database of Systematic Reviews·Sadia JanjuaRebecca T Disler

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