Patient Perceptions in Mast Cell Disorders

Immunology and Allergy Clinics of North America
Susan V JenningsMariana C Castells

Abstract

Understanding experiences, perceptions, and perspectives of patients with a mast cell disorder (MCD), including cutaneous mastocytosis, systemic mastocytosis, mast cell activation syndromes, and hereditary α-tryptasemia, is an important aspect of successful care, treatment, and informed development of novel therapies. This article reviews existing studies and presents new data on MCD patient perceptions regarding medical care, symptoms, allergies/sensitivities, triggers, future health/disease progression, treatment, impact on daily living, quality of life, support needs, and concerns regarding possible familial disease. Discussion includes aspects affecting the MCD community that require further consideration and development.

Citations

Apr 24, 2020·Diagnosis·Lawrence B AfrinGerhard J Molderings
Sep 3, 2019·The Journal of Allergy and Clinical Immunology·Catherine R WeilerLawrence B Schwartz
Feb 5, 2021·International Journal of Molecular Sciences·Jan RomantowskiPeter Valent
Feb 27, 2021·Orphanet Journal of Rare Diseases·Catriona Chaplin
Jul 21, 2020·Annals of Allergy, Asthma & Immunology : Official Publication of the American College of Allergy, Asthma, & Immunology·Theoharis C Theoharides
May 19, 2021·Journal of Health Psychology·Jennifer Nicoloro SantaBarbara, Marci Lobel
Jun 22, 2021·Annals of Allergy, Asthma & Immunology : Official Publication of the American College of Allergy, Asthma, & Immunology·Jennifer Nicoloro-SantaBarbaraMarci Lobel
Apr 14, 2020·Journal of the American Association of Nurse Practitioners·Nathalie VacheronReba Umberger
Jun 25, 2021·The Journal of Allergy and Clinical Immunology. in Practice·Theo GülenPeter Valent
Jul 8, 2021·Current Allergy and Asthma Reports·Joana Caiado, Mariana C Castells
Jul 17, 2021·Annals of Allergy, Asthma & Immunology : Official Publication of the American College of Allergy, Asthma, & Immunology·Susan V JenningsAngela S Bowman
Jan 29, 2020·Actas dermo-sifiliográficas·M Bertolín-ColillaA M Giménez-Arnau

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