Patient perceptions of carrying their own health information: approaches towards responsibility and playing an active role in their own health - implications for a patient-held health file.

Health Expectations : an International Journal of Public Participation in Health Care and Health Policy
Rowena ForsythMarissa Lassere

Abstract

To elicit patients' views on whether they could contribute to improvements in their care by carrying their own health information to clinician encounters; and to consider the implications for the development of a patient-held health file (PHF). Increasing rates of chronic disease lead to health care being delivered by multiple care providers often at distributed geographic locations. As a way of increasing the availability of patient information to care providers our project will trial a PHF. Patients carry these files to doctors' appointments where clinicians record data for other doctors or the patient. Increasing the availability of patient information is anticipated to enhance the safety and quality of care delivery and improve health outcomes. Qualitative semi-structured interviews were conducted with 10 patients. Participants were evenly distributed in terms of gender, aged 60 years or greater and visited at least two specialists and one general practitioner. In this exploratory study, patients who were currently active in decision making about their own health already recorded some health information. They were receptive to carrying their information and thought they should take some responsibility for their health. Pati...Continue Reading

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Citations

Apr 5, 2013·Journal of Obstetrics and Gynaecology : the Journal of the Institute of Obstetrics and Gynaecology·C Amoah, K Appiah-Sakyi
Apr 17, 2014·Pain Medicine : the Official Journal of the American Academy of Pain Medicine·Roxana DelgadoUNKNOWN Active Self-Care Therapies for Pain (PACT) Working Group
Jul 26, 2014·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Samantha A SartainJacqui Prieto

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