Patient perspectives in sarcoidosis

Current Opinion in Pulmonary Medicine
Sanne J van HelmondtJan C Grutters

Abstract

The review presents an overview of the scientific publications about patient perspectives in sarcoidosis. The literature on patient perspectives in sarcoidosis is limited. Patient perspectives in sarcoidosis encompass a myriad of topics that have been addressed to some degree in the literature: patient needs and perceptions, patient-reported burden of sarcoidosis, and patient treatment priorities. Similar findings across studies were high levels of reported fatigue, a need to incorporate psychological support into the treatment plan and easy access to sarcoidosis expert centers. Furthermore, largely similar results were found across countries. There is a growing focus in patient perspectives in terms of sarcoidosis treatment. A multidisciplinary approach including psychological support and attention to fatigue, may better reflect the needs of sarcoidosis patients. Further research on sarcoidosis patient perspectives in sarcoidosis is needed to optimize care.

References

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Citations

Feb 1, 2020·Expert Review of Respiratory Medicine·W Ennis James, Marc A Judson
Feb 7, 2020·Journal of Clinical Medicine·Catharina C MoorMarlies S Wijsenbeek
Jul 24, 2020·Current Opinion in Pulmonary Medicine·Florence Jeny, Jan C Grutters
Aug 23, 2019·Respiration; International Review of Thoracic Diseases·Mareye VoortmanJolanda De Vries

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