Patient Perspectives on Advance Care Planning via a Patient Portal

The American Journal of Hospice & Palliative Care
Sarah R JordanHillary D Lum

Abstract

Patient portals can offer patients an opportunity to engage in the advance care planning (ACP) process outside of clinical visits. To describe patient perspectives on use of patient portal-based ACP tools. Interviews with patients who used portal-based ACP tools. The tools included an electronic Medical Durable Power of Attorney (MDPOA) form to designate a medical decision maker, a patient-centered educational web page, online messaging, and patient access to completed advance directives stored in the electronic health record (EHR). Regional health-care system with a common EHR. Semistructured interviews with purposefully sampled patients who used the ACP tools. Questions explored motivations for using the tools and perceptions about how the tools fit into ACP. Analysis followed a grounded hermeneutic editing approach. From 46 patients (mean age: 49, 63% female), 4 key themes emerged: (1) individualized explorations of the ACP tools, (2) personal initiation and engagement with ACP tools through the portal, (3) value of connecting ACP portal tools to clinical care, and (4) practicality of the ACP tools. Patients described benefits of communicating with health-care team members who referred them to online ACP tools, as well as ha...Continue Reading

References

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Citations

Sep 19, 2019·Journal of Palliative Medicine·Jennifer Dickman PortzSheana Bull
Jun 3, 2020·Journal of Social Work in End-of-life & Palliative Care·Jennifer Dickman PortzElizabeth A Bayliss
Apr 21, 2020·American Journal of Medical Quality : the Official Journal of the American College of Medical Quality·Lauge Sokol-HessnerJennifer Cluett
Mar 3, 2020·The American Journal of Hospice & Palliative Care·Adam MosesJennifer Gabbard
Jul 28, 2020·Journal of Medical Internet Research·Jennifer D PortzHillary D Lum
Aug 1, 2020·JMIR Research Protocols·Abrar AlturkistaniCeire Costelloe
Jun 2, 2021·Journal of Palliative Medicine·Jennifer Dickman PortzElizabeth Bayliss

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