Patient perspectives on use of electronic health records for research recruitment

BMC Medical Research Methodology
Laura M BeskowCatherine M Hammack

Abstract

EHR phenotyping offers the ability to rapidly assemble a precisely defined cohort of patients prescreened for eligibility to participate in health-related research. Even so, stakeholders in the process must still contend with the practical and ethical challenges associated with research recruitment. Patient perspectives on these matters are particularly important given that the success of research recruitment depends on patients' willingness to participate. We conducted 15 focus groups (n = 110 participants) in four counties in diverse regions of the southeastern US: Appalachia, the Mississippi Delta, and the Piedmont area of North Carolina. Based on a hypothetical study of a behavioral intervention for type 2 diabetes, we asked about the acceptability and appropriateness of direct investigator versus physician-mediated contact with patients for research recruitment, and whether patients should be asked to opt in or opt out of further contact in response to recruitment letters. For initial contact, nearly all participants said it would be acceptable for researchers to contact patients directly and three-fourths said that it would be acceptable for researchers to contact patients through their physicians. When we asked which wou...Continue Reading

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Citations

Jun 11, 2019·Journal of the American Medical Informatics Association : JAMIA·Gillian FeldmethStacy Tessler Lindau
Jan 20, 2021·Ethics & Human Research·Connie M UlrichTherese S Richmond
Apr 16, 2021·Contemporary Clinical Trials·Allison VorderstrasseConstance Johnson
May 6, 2021·Journal of Clinical and Translational Science·Laura M BeskowCatherine M Hammack-Aviran
Dec 7, 2021·Journal of the American Medical Informatics Association : JAMIA·Kellie M WaltersTimothy S Carey

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