Patient, physician, and caregiver perspectives on ovarian cancer treatment decision making: lessons from a qualitative pilot study

Pilot and Feasibility Studies
Rachel PozzarDonna L Berry

Abstract

Ovarian cancer is the deadliest gynecologic malignancy and the fifth leading cause of cancer death among women living in the USA. Treatment for ovarian cancer that follows the guidelines published by the National Comprehensive Cancer Network is associated with a 33% decrease in disease-specific mortality, yet fewer than 40% of women with ovarian cancer receive guideline-adherent treatment. Little is known about the process by which women with ovarian cancer, their unpaid caregivers, and physicians make decisions about ovarian cancer treatment. We are planning to conduct a population-based study examining the ovarian cancer treatment decision-making process from the perspective of women with ovarian cancer, their caregivers, and physicians using a qualitative approach. Prior to embarking on a large-scale study, we determined it would be beneficial to pilot test our unpaid caregiver recruitment protocol and identify preliminary topics for the main study's interview guide. We conducted a cross-sectional descriptive study using a qualitative approach. Data were collected via unstructured, individual interviews. Data were analyzed using modified grounded theory methods. We interviewed six women with ovarian cancer, four unpaid careg...Continue Reading

References

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Citations

Jul 3, 2019·International Journal of Gynecological Cancer : Official Journal of the International Gynecological Cancer Society·Myrte ZijlstraLonneke van de Poll-Franse
Aug 20, 2019·Oncology Nursing Forum·Rachel A Pozzar, Donna L Berry

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