Patient-reported healthcare expectations in inflammatory bowel diseases

PloS One
Valérie PittetSwiss IBD Cohort Study Group

Abstract

Patient-reported experience is an important component of a holistic approach to quality of care. Patients' expectations of treatments and global disease management may indicate their illness representations and their satisfaction and hopes regarding quality of care. To study expectations of patients with inflammatory bowel disease. Two focus groups were conducted with 14 patients to explore their expectations about treatments and disease management. From qualitative content analyses of focus group discussions, we built a 22-item expectations questionnaire that was sent to 1756 patients of the Swiss IBD cohort. Answers were collected on a visual analog scale from 0 to 100, and medians (interquartile range [IQR]) calculated. Factor analysis identified main expectation dimensions, and multivariate analyses were performed to describe associations with patient characteristics. Of 1094 patients (62%) included in the study, 54% were female, 54% had Crohn's disease, 35% had tertiary education, and 72% were employed. Expectation dimensions comprised realistic, predictive, and ideal expectations and were linked to information, communication, daily care, and disease recognition. Half (11 of 22) of the expectations were ranked as very high...Continue Reading

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Citations

May 22, 2019·The European Journal of Health Economics : HEPAC : Health Economics in Prevention and Care·Márta PéntekLászló Gulácsi
Mar 25, 2020·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Hyun Jung SongMark Fort Harris
Sep 14, 2020·Colorectal Disease : the Official Journal of the Association of Coloproctology of Great Britain and Ireland·M PéntekF Rencz
May 23, 2021·Digestive Diseases and Sciences·Alex Al KhouryPeter L Lakatos
Jul 28, 2021·The Korean journal of gastroenterology = Taehan Sohwagi Hakhoe chi·Yong Eun ParkTae Oh Kim

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