Patient-reported outcomes in core domain sets for rheumatic diseases

Nature Reviews. Rheumatology
Lilian H D van Tuyl, Maarten Boers

Abstract

Patient-reported outcomes (PROs) are abundant in rheumatology and their numbers continue to increase. But which of the available measures are most important? Core outcome sets-including groups of domains and instruments for measuring them-have been defined for many rheumatic diseases, with the aim that all these outcomes should be measured in every clinical trial. The subgroup of PROs included in these core sets is, therefore, undoubtedly important. This Review summarizes the PROs included in core outcome sets developed for use in clinical trials across a wide range of rheumatic diseases. Three PROs are commonly utilized across the majority of rheumatic conditions: pain, physical functioning and the patient global assessment of disease activity. However, additional research is needed to fully understand the role of the patient global assessment of disease activity, to distinguish specific domains within the broad concept of health-related quality of life, and to work towards consensus on the choice between generic and disease-specific instruments in various contexts.

References

Jul 1, 1997·Arthritis and Rheumatism·E H GianniniA Martini
Nov 16, 2001·Rheumatology·F W MillerUNKNOWN International Myositis Outcome Assessment Collaborative Study Group
Jul 2, 2003·Rheumatology·Nicolino RupertoUNKNOWN Pediatric Rheumatology Collaborative Study Group (PRCSG)
Aug 17, 2006·International Journal of Clinical Practice·H H ColwellN Joseph-Ridge
Oct 3, 2006·Arthritis and Rheumatism·Liana FraenkelDick Wittink
Apr 5, 2008·Annals of the Rheumatic Diseases·C GordonD T Boumpas
Jul 16, 2008·Annals of the Rheumatic Diseases·C LukasUNKNOWN Assessment of SpondyloArthritis international Society
Sep 24, 2009·Rheumatology·Patricia MinnockBarry Bresnihan
Oct 13, 2009·The Journal of Rheumatology·Philip MeaseUNKNOWN OMERACT Fibromyalgia Working Group
Oct 13, 2009·The Journal of Rheumatology·Peter A MerkelRaashid Luqmani
May 13, 2010·Arthritis Care & Research·UNKNOWN American College of Rheumatology Pain Management Task Force
Jun 30, 2010·Current Rheumatology Reports·Adnan N Kiani, Michelle Petri
Jul 3, 2010·Arthritis Care & Research·Nicolino RupertoUNKNOWN Pediatric Rheumatology Collaborative Study Group (PRCSG)
Oct 3, 1946·The New England Journal of Medicine·O STEINBROCKER, A BLAZER
Jul 5, 2011·The Journal of Rheumatology·Jasvinder A SinghH Ralph Schumacher
Jul 5, 2011·The Journal of Rheumatology·Peter A MerkelRaashid A Luqmani
Jul 5, 2011·The Journal of Rheumatology·Philip J MeaseUNKNOWN OMERACT Fibromyalgia Working Group
Nov 16, 2011·Arthritis and Rheumatism·Angelo L GaffoJasvinder A Singh
Mar 20, 2012·Seminars in Arthritis and Rheumatism·Stefan W H DandorferMatthias Englbrecht
May 23, 2012·Arthritis and Rheumatism·Lilian H D van Tuyl, Maarten Boers
Jul 16, 2013·Annals of the Rheumatic Diseases·Elisabeth LieUNKNOWN OMERACT RA Flare Working Group
Oct 10, 2013·Trials·Jamie J KirkhamPaula R Williamson
Oct 17, 2013·The Journal of Rheumatology·Kenneth TangDorcas E Beaton

❮ Previous
Next ❯

Citations

Jun 24, 2017·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Martijn A H Oude VoshaarMart A F J van de Laar
Sep 20, 2017·Journal of Clinical Rheumatology : Practical Reports on Rheumatic & Musculoskeletal Diseases·Rachel J BlackCatherine L Hill
Aug 3, 2017·The Journal of Rheumatology·Linda A RaschUNKNOWN Working Group on the Patients’ Perspective on Remission in Rheumatoid Arthritis
Jun 14, 2018·Rheumatology·Elena NikiphorouMarwan Bukhari
Nov 15, 2018·Pain Research & Management : the Journal of the Canadian Pain Society = Journal De La Société Canadienne Pour Le Traitement De La Douleur·Fausto SalaffiSonia Farah
Apr 14, 2018·Nature Reviews. Rheumatology·Lisa G RiderNicolino Ruperto
Nov 26, 2020·Rheumatology·Nathalie Luurssen-MasurelUNKNOWN tREACH group investigators
Apr 25, 2021·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Jennifer S RiggsEugene Nuccio

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Arthritis Care & Research
Penélope Esther PalominosLaure Gossec
Best Practice & Research. Clinical Rheumatology
Nadia J C Luca, Brian M Feldman
Health and Quality of Life Outcomes
David R Thompson, Cheuk-Man Yu
© 2021 Meta ULC. All rights reserved