Patient-reported outcomes in melanoma survivors at 1, 3 and 5 years post-diagnosis: a population-based cross-sectional study

Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
Karolina LisyMichael Jefford

Abstract

There is a lack of population-based data describing patient reported outcomes (PROs) in melanoma survivors which could guide the development of interventions and resources. This study assessed overall quality of life (QoL), self-reported symptoms and unmet information needs in melanoma survivors 1, 3 or 5 years post-diagnosis. A cross-sectional postal survey was conducted in Victoria, Australia, with eligible melanoma survivors identified from a population-based cancer registry. Patient-reported outcome measures included the EuroQoL 5-Dimension 5-Level (EQ-5D-5L), and self-reported symptoms, difficulties and information needs. Associations between demographic, disease and care-related factors and QoL were also assessed. A total of 476 melanoma survivors participated in the study (response rate 46.5%). Anxiety and depressive symptoms were more prevalent in survivors compared to the general population (30.7% vs 21.6%; p < 0.01). Fear of cancer recurrence (48.3%) and fear of cancer spreading (37.8%) were the most commonly reported symptom items, and approximately one in five melanoma survivors had unmet information needs related to psychological aspects of living with melanoma. Recurrent melanoma, living in a nursing home, chronic...Continue Reading

References

Jul 21, 2010·Cancer Epidemiology, Biomarkers & Prevention : a Publication of the American Association for Cancer Research, Cosponsored by the American Society of Preventive Oncology·Richard BränströmYvonne Brandberg
Feb 23, 2011·Archives of Dermatology·Cynthia HolterhuesTamar Nijsten
Jan 5, 2012·British Journal of Cancer·E K WatsonC Wilkinson
May 8, 2013·Applied Health Economics and Health Policy·Richard NormanRosalie Viney
Oct 18, 2014·Melanoma Research·Julie B WinstanleyUNKNOWN European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group
Jul 28, 2016·The Medical Journal of Australia·Karen LaceyJon D Emery
Oct 28, 2016·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Nadine A KasparianGraham J Mann
Nov 14, 2016·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Jean-Francois HamelAndrew Bottomley
Dec 22, 2016·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Mbathio DiengNadine A Kasparian
Mar 1, 2017·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Rachel Isaksson VogelDeAnn Lazovich
Apr 24, 2017·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Michael JeffordJim Bishop

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Citations

Mar 13, 2021·Surgical Oncology Clinics of North America·Jennifer H AldrinkMary Austin

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