Patient-reported outcomes of adults with congenital heart disease from eight European countries: scrutinising the association with healthcare system performance

European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology
Liesbet Van BulckPhilip Moons

Abstract

Inter-country variation in patient-reported outcomes of adults with congenital heart disease has been observed. Country-specific characteristics may play a role. A previous study found an association between healthcare system performance and patient-reported outcomes. However, it remains unknown which specific components of the countries' healthcare system performance are of importance for patient-reported outcomes. The aim of this study was to investigate the relationship between components of healthcare system performance and patient-reported outcomes in a large sample of adults with congenital heart disease. A total of 1591 adults with congenital heart disease (median age 34 years; 51% men; 32% simple, 48% moderate and 20% complex defects) from eight European countries were included in this cross-sectional study. The following patient-reported outcomes were measured: perceived physical and mental health, psychological distress, health behaviours and quality of life. The Euro Health Consumer Index 2015 and the Euro Heart Index 2016 were used as measures of healthcare system performance. General linear mixed models were conducted, adjusting for patient-specific variables and unmeasured country differences. Health risk behaviou...Continue Reading

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Citations

Jun 12, 2020·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Philip MoonsUNKNOWN APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD)
Sep 19, 2019·European Journal of Preventive Cardiology·Christina E HolbeinUNKNOWN APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD)
Jul 17, 2020·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·By Leonie Klompstra And Tiny Jaarsma
Mar 3, 2020·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Philip Moons
Jun 5, 2020·BMC Health Services Research·Liesbet Van BulckUNKNOWN APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD)
Mar 3, 2020·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Philip Moons
May 19, 2020·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Liesbet Van BulckPhilip Moons
Aug 25, 2020·Current Opinion in Organ Transplantation·Amy ColemanAli N Zaidi
Jan 19, 2021·The American Journal of Cardiology·Philip MoonsUNKNOWN APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD)
Feb 12, 2021·European Journal of Cardiovascular Nursing : Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology·Philip MoonsUNKNOWN APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD)
Jun 7, 2020·Pediatrics·Alireza RaissadatiEero Jokinen

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