Patients and informal caregivers' experiences of burden of treatment in lung cancer and chronic obstructive pulmonary disease (COPD): a systematic review and synthesis of qualitative research

BMJ Open
Kate Alice LippiettCarl R May

Abstract

To identify, characterise and explain common and specific features of the experience of treatment burden in relation to patients living with lung cancer or chronic obstructive pulmonary disease (COPD) and their informal caregivers. Systematic review and interpretative synthesis of primary qualitative studies. Papers were analysed using constant comparison and directed qualitative content analysis. CINAHL, EMBASE, MEDLINE, PsychINFO, Scopus and Web of Science searched from January 2006 to December 2015. Primary qualitative studies in English where participants were patients with lung cancer or COPD and/or their informal caregivers, aged >18 years that contain descriptions of experiences of interacting with health or social care in Europe, North America and Australia. We identified 127 articles with 1769 patients and 491 informal caregivers. Patients, informal caregivers and healthcare professionals (HCPs) acknowledged lung cancer's existential threat. Managing treatment workload was a priority in this condition, characterised by a short illness trajectory. Treatment workload was generally well supported by an immediacy of access to healthcare systems and a clear treatment pathway. Conversely, patients, informal caregivers and HC...Continue Reading

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Citations

Aug 3, 2020·Current Opinion in Supportive and Palliative Care·Suhani PatelNicola J Roberts
Sep 4, 2020·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Katja KrugMichel Wensing
Nov 28, 2020·Advances in Therapy·John R HurstMark T Dransfield
Jan 23, 2021·PloS One·Nicole El-TurkClaudia C Dobler
Jun 12, 2021·International Journal of Chronic Obstructive Pulmonary Disease·Seoyoon WooJanet L Larson

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