Patients' Experiences of LIving with CANcer-associated thrombosis: the PELICAN study

Patient Preference and Adherence
Simon NobleAnnmarie Nelson

Abstract

Thrombosis remains the most common preventable cause of mortality in cancer patients receiving chemotherapy. Whilst the prophylaxis and treatment of this condition is well understood, the patient experience and subsequent behavioral factors are not. Patients receiving treatment for cancer-associated thrombosis (CAT) were interviewed about their experiences of CAT within the context of their cancer journey. Twenty interviews were transcribed and analyzed using framework analysis. Chemotherapy patients were well informed about the risks of febrile neutropenia, how to recognize it, and when to seek medical attention. However, they had limited knowledge about CAT and received no information about the condition. Red flag symptoms suggestive of CAT were attributed to chemotherapy or the underlying cancer, resulting in delayed presentation to hospital, and diagnosis. The CAT journey was considered a distressing one, with limited support or information, in complete juxtaposition with the treatment they received for their cancer. Patients felt there was little ownership for the management of CAT, which further added to their distress. CAT is a common occurrence and patients view their experiences of it within the context of their overal...Continue Reading

Citations

Oct 21, 2016·Journal of Thrombosis and Haemostasis : JTH·I MahéS Noble
Mar 16, 2018·Journal of Oncology Pharmacy Practice : Official Publication of the International Society of Oncology Pharmacy Practitioners·Jacob C EasawAdrian Azim
Jul 3, 2018·Expert Opinion on Pharmacotherapy·Davide ImbertiWalter Ageno
Jul 17, 2019·Clinical Medicine : Journal of the Royal College of Physicians of London·Simon Noble
Jun 28, 2016·Current Opinion in Supportive and Palliative Care·Simon Noble
Jun 18, 2019·International Angiology : a Journal of the International Union of Angiology·Iva GolemiAlfonso J Tafur
Dec 14, 2018·World Journal of Urology·Pia PaffenholzAxel Heidenreich
Apr 18, 2019·International Journal of Gynecological Cancer : Official Journal of the International Gynecological Cancer Society·Zibi MarchockiFeras Abu Saadeh
Jan 29, 2020·Research and Practice in Thrombosis and Haemostasis·Simon NobleAgnes Lee
Sep 13, 2017·Frontiers in Medicine·Alannah Smrke, Peter L Gross
Apr 21, 2020·Clinical Epidemiology·Inger Lise GadeSigne Juul Riddersholm
Apr 9, 2018·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Carme FontSimon Noble
Nov 15, 2018·Blood Advances·Inger Lise GadeMarianne Tang Severinsen
May 3, 2019·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·P DebourdeauD Farge
Jan 10, 2021·Journal of Thrombosis and Haemostasis : JTH·Henriette Strøm KahrOle Thorlacius-Ussing
Feb 7, 2021·Thrombosis Research·Zara SayarMari Thomas
Jun 22, 2021·TH Open : Companion Journal to Thrombosis and Haemostasis·Anette Arbjerg HøjenTorben Bjerregaard Larsen
Aug 18, 2021·Research and Practice in Thrombosis and Haemostasis·Elin BaddeleySimon Noble

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Methods Mentioned

BETA
pull

Software Mentioned

NVivo
PELICAN
CAT

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