Patients' illness narratives-From being healthy to living with incurable cancer: Encounters with doctors through the disease trajectory.

Cancer Reports
K KvåleOddgeir Synnes

Abstract

Narrative medicine emphasizes how stories can increase the understanding of patients' experiences and give important insights into how patients interpret and strive to make meaning in the situation they find themselves in. The aim of this study was to gain insight into the illness narratives of cancer patients, from the day they suspected that something was wrong until living with incurable cancer. Six men and seven women, aged 47 to 79 years, diagnosed with metastatic cancer and undergoing chemotherapy with life-prolonging intent in an oncology outpatient clinic, were asked to tell their illness stories as freely as possible, without guiding questions. Stories were tape recorded, transcribed, and analyzed by a thematic narrative analysis. Encounters with doctors through the disease trajectory were highlighted by all narrators. Several informants described poor communication and consequences in the form of "doctors delay" and substandard psychosocial care. Continuity in follow-up and the physician's ability or inability to break bad news and adapt information to the patient's wishes and preferences were particularly emphasized. A key finding was the importance of the doctor's role throughout the whole trajectory. A good doctor-...Continue Reading

References

Jul 23, 2002·Palliative Medicine·L J FallowfieldH A Beveridge
Aug 13, 2004·European Journal of Cancer Care·A Carlick, F C Biley
Jan 31, 2006·European Journal of Cancer Care·R L Woodgate
Jul 1, 2006·Journal of the American Board of Family Medicine : JABFM·Nancy Pandhi, John W Saultz
Oct 25, 2006·The American Journal of Hospice & Palliative Care·Bronna D Romanoff, Barbara E Thompson
Mar 26, 2008·Lancet·Sayantani DasGupta
Jul 16, 2008·Patient Education and Counseling·Pål GulbrandsenRichard Frankel
Mar 17, 2010·International Journal of Integrated Care·Arnstein Finset
Nov 17, 2011·Journal of the American Board of Family Medicine : JABFM·Kathryn I PollakTruls Ostbye
Dec 8, 2011·International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care·Sina WaibelMaría-Luisa Vázquez
Feb 19, 2013·Patient Education and Counseling·Pål GulbrandsenDanielle Blanch-Hartigan
Oct 22, 2013·JAMA : the Journal of the American Medical Association·UNKNOWN World Medical Association
Dec 11, 2014·BMJ : British Medical Journal·Georgios LyratzopoulosGreg Rubin
Jul 18, 2015·The Oncologist·Walter F Baile
Jan 14, 2016·Tidsskrift for den Norske lægeforening : tidsskrift for praktisk medicin, ny række·Frank OlsenLise Balteskard
Oct 5, 2018·European Journal of Cancer Care·Marta QualizzaLuca Ghirotto
Oct 12, 2018·European Journal of Cancer Care·Mette SandagerPeter Vedsted
Jul 13, 2019·International Journal of Qualitative Studies on Health and Well-being·Frank HansenAnita Salamonsen

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