Pediatric to Adult Transitions of Ketogenic Dietary Therapy for Epilepsy.

Journal of Child Neurology
Kristin SeaborgElizabeth A Felton

Abstract

Ketogenic therapy is now an accepted treatment for pediatric and adult patients with medically refractory epilepsy.1-3 However, young adults treated with a ketogenic diet face unique challenges when transitioning to adult neurology providers.4 The variable acceptance of dietary therapy, paucity of nutritionists and adult neurology providers educated in dietary therapy, and lack of insurance coverage for dietary education may interfere with transition to adult care. In addition, patients in this life stage may just begin to independently seek medical care, cook meals, and manage medications, making strict dietary limitations difficult.4 In this worldwide study, we surveyed 191 pediatric and adult neurology providers who prescribe ketogenic dietary therapy for epilepsy. Our response rate was 39% with a total of 74 valid surveys received. Our goal was to identify perceived barriers that inhibit effective transition and successful continuation of dietary therapy during transition to adult care. We found that dietary therapy is a more accepted treatment of intractable epilepsy in children (84%) than adults (17%) in all geographic areas. Although half of pediatric neurology providers (50%) transition their young adult patients on die...Continue Reading

References

Oct 9, 2007·Epilepsia·Eric H KossoffEileen P G Vining
Feb 19, 2008·Journal of Child Neurology·Katherine S MastrianiBernard L Maria
Dec 17, 2008·Epilepsia·James W Wheless
Jun 4, 2010·Expert Review of Neurotherapeutics·Eric H Kossoff
Aug 21, 2010·Developmental Medicine and Child Neurology·Sarah A Kelley, Eric H Kossoff
Nov 9, 2010·Advances in Pediatrics·John M Freeman, Eric H Kossoff
Feb 25, 2011·Epilepsy Research·Sudha Kilaru KesslerA G Christina Bergqvist
Apr 11, 2013·Seizure : the Journal of the British Epilepsy Association·Eric H KossoffMackenzie C Cervenka
Apr 23, 2014·Developmental Medicine and Child Neurology·Veronique GroleauChristina A Bergqvist
Aug 22, 2014·Journal of Child Neurology·Da Eun JungAnne T Berg
Oct 8, 2014·Pediatrics·Alaina M DavisMelissa L McPheeters
Jul 24, 2017·Clinical Neurophysiology Practice·Jae-Moon Kim
Oct 24, 2018·Pediatrics·Patience H WhiteUNKNOWN AMERICAN COLLEGE OF PHYSICIANS

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