Perceptions about intellectual disability: a qualitative study from Vellore, South India

Journal of Intellectual Disability Research : JIDR
S EdwardrajK S Jacob

Abstract

Cultural and religious beliefs influence perceptions about health and illness. Data, from India, on perceptions about intellectual disability are scant. This study explored people's cultural beliefs and attitudes about intellectual disability, perceived needs and burden associated with care in Vellore, south India. A qualitative methodology using focus groups was employed. Eight focus groups were conducted in three settings and included the mothers of children and adolescents with intellectual disability (four groups, n = 29), community health workers (two groups, n = 17) and schoolteachers (two groups, n = 16). Our results suggest that cultural and religious beliefs perpetuated negative attitudes towards disability. This meant that caregivers bore a high burden of care with little support from family or society. The study confirmed the presence of diverse, multiple and contradictory models of disability drawing from biomedical and local religious, social and cultural constructs. Public awareness, education and community-level interventions for reducing the misconceptions and stigma related to intellectual disability are needed in addition to culturally sensitive treatment methods to improve the attitude towards and management ...Continue Reading

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Citations

Jan 4, 2013·Journal of Autism and Developmental Disorders·Tamara C DaleyVibha Krishnamurthy
Dec 27, 2012·International Health·Michele S O'SheaaDouglas L Tarene
Sep 21, 2012·Disability and Rehabilitation·Faye LimHelen Leonard
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Jan 13, 2021·Journal of Child Neurology·Elizabeth SpiegelJohn Colin Partridge
Feb 12, 2021·Research in Developmental Disabilities·Monica Kaniamattam, Judith Oxley
Oct 27, 2020·Disability and Rehabilitation·Sankar Sahayaraj MuthukaruppanSankara Raman Srinivasan
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Dec 24, 2020·Canadian Journal of Occupational Therapy. Revue Canadienne D'ergothérapie·C Suja AngelinK Rajendran

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