Perceptions of changes in clinical, informational, and supportive relationships after end of treatment among parents of young childhood cancer survivors.

Psycho-oncology
Justin G WilfordLari Wenzel

Abstract

Parents of childhood cancer patients experience changes in relationships with their health-care team as the child transitions from treatment to long-term survivorship (LTS). These changes may affect parent receptivity of survivorship-health-related programs, yet little is known about the experience of changing clinical relationships for parents as treatment ends and children transition into LTS. In-depth, semistructured interviews were conducted with 20 English-speaking parents of childhood cancer survivors less than 13 years old who were greater than 1-year posttreatment. Audiotaped, transcribed interview content was analyzed using emergent themes grouped and refined in a process of multistaged constant comparison. There was a consensus among parents regarding the emotional stressors of the period immediately after the end of treatment. Regardless of positive or negative recollection of treatment, parents commonly viewed their health-care team with affection and this period as one of stability and security. Transitioning off treatment was viewed as a severe disruption of the security of weekly, treatment-related contact with nurses, nurse practitioners, physician's assistants, and physicians. LTS was generally viewed as presen...Continue Reading

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Citations

Mar 12, 2019·The Cochrane Database of Systematic Reviews·Esmee Cm KooijmansMargreet A Veening
Aug 1, 2019·Human Vaccines & Immunotherapeutics·Gregory D Zimet, Nosayaba Osazuwa-Peters
Dec 4, 2019·Current Opinion in Pediatrics·Lori WienerAmanda L Thompson
Jun 17, 2021·Pediatric Blood & Cancer·Elizabeth FootAmy E Caruso Brown
Sep 30, 2021·Integrative Cancer Therapies·Anabel Melguizo-GarínIván Ruiz-Rodríguez
Dec 6, 2021·Journal of Pediatric Psychology·Jenny DaviesNicholas G Gottardo

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