Perceptions of inadequate health care and feelings of guilt in parents after the death of a child to a malignancy: a population-based long-term follow-up

Journal of Palliative Medicine
Pamela J SurkanGunnar Steineck

Abstract

Parental feelings of guilt can be a serious problem after the death of a child to a malignancy. This study identified predictors of feelings of guilt in parents during the year after a child's death. The Swedish Cause of Death Register and Swedish Cancer Register were used to identify all parents in Sweden who had a child who died of a malignancy between 1992-1997. Among parents not reporting recent depression, those who were not confident that their child would immediately receive help from the staff in the hospital while he or she was sick with a malignancy (compared to those who felt partly or entirely sure, relative risk [RR] 4.0; 95% confidence interval [CI] 2.1-7.6), were at increased risk for reporting daily or weekly feelings of guilt in the year after the child's death. Parents who perceived that the staff in the pediatric cancer ward were incompetent were at increased risk (compared to parents reporting partial or total competence, RR 3.7; 95% CI 1.6-8.6). Compared to parents reporting that their children had moderate or much access, those who felt their children had little or no access to pain relief, dietary advice, anxiety relief, and relief of other psychological symptoms beside anxiety were at more than two times...Continue Reading

References

Dec 1, 1979·Journal of Clinical Gastroenterology·H M Spiro
Jan 1, 1989·Pediatric Hematology and Oncology·M JankovicJ J Spinetta
Mar 1, 1981·Social Science & Medicine. Medical Psychology & Medical Sociology·R Frankenberg
Sep 1, 1981·Journal of Pediatric Psychology·J J SpinettaJ P Sheposh
Apr 1, 1997·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·L James, B Johnson
Jun 1, 1997·Scandinavian Journal of Psychology·F Thuen
Jan 1, 1997·British Journal of Cancer·C HodgsonE Butters
May 6, 1999·The New England Journal of Medicine·K BergmarkG Steineck
Feb 3, 1990·Children's Health Care : Journal of the Association for the Care of Children's Health·K E Jost, J E Haase
Feb 3, 2000·The New England Journal of Medicine·J WolfeJ C Weeks
Apr 26, 2000·Pediatric Hematology and Oncology·G LjungmanA Kreuger
Jan 12, 2002·Archives of Pediatrics & Adolescent Medicine·Nancy ControHarvey Cohen
Mar 7, 2002·Journal of Pediatric Hematology/oncology·W S Ferguson
Aug 9, 2002·Journal of Affective Disorders·Lynn E O'ConnorPaul Gilbert
Mar 8, 2003·Scandinavian Journal of Public Health·Unnur ValdimarsdóttirGunnar Steineck
Sep 16, 2003·Behaviour Research and Therapy·Paul A BoelenMarcel A van den Hout
Dec 20, 2003·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Anna MilbergMaria Jakobsson
Sep 21, 2005·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Ulrika KreicbergsJan-Inge Henter

❮ Previous
Next ❯

Citations

Jun 29, 2012·Journal of Palliative Medicine·Danielle A Cataudella, Shayna Zelcer
May 12, 2010·Pediatrics·Anthony D SlonimSamir S Shah
Aug 3, 2014·Pediatric Clinics of North America·Jori F BogetzJay G Berry
Aug 3, 2014·Pediatric Clinics of North America·Liza-Marie JohnsonJustin N Baker
Apr 1, 2014·Journal of Pain and Symptom Management·Norbert J Weidner, Diane M Plantz
Dec 25, 2015·Pediatric Blood & Cancer·Wendy G LichtenthalLori Wiener
Sep 21, 2010·Journal of Pain and Symptom Management·Elisabeth P DellonLaura C Hanson
Feb 22, 2011·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·Junmei Miao JonassonGunnar Steineck
Feb 15, 2014·Death Studies·Jie LiAmy Y M Chow
Jul 17, 2013·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Tove Bylund GrenkloCarl Johan Fürst
Jan 20, 2011·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Deborah TomlinsonLillian Sung
Jan 23, 2013·Nature Reviews. Clinical Oncology·Elisha Waldman, Joanne Wolfe
Feb 15, 2008·Intellectual and Developmental Disabilities·Deirdre E ReillyJaci C Huws
Jul 20, 2019·Journal of Oncology Practice·Katharine E BrockChristina Ullrich
Feb 6, 2020·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Jennifer SnamanJoanne Wolfe
May 12, 2017·Omega·Jie LiAmy Y M Chow
Feb 6, 2020·Palliative Medicine·Wendy G LichtenthalLori Wiener
Dec 17, 2015·Omega·Catherine Duncan, Joanne Cacciatore
Dec 19, 2020·European Journal of Cancer Care·Amanda Jue Ning TanShefaly Shorey
Mar 24, 2010·Pediatrics·Betty DaviesKimberley Widger
May 23, 2020·Pediatrics·Meaghann S WeaverPamela S Hinds
Jan 22, 2022·Current Oncology Reports·Naveen SalinsNancy Preston
Jan 22, 2022·Current Oncology Reports·Allison UberKatharine E Brock

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Annals of Oncology : Official Journal of the European Society for Medical Oncology
Arna HauksdóttirGunnar Steineck
The New England Journal of Medicine
Ulrika KreicbergsGunnar Steineck
European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)
Junmei Miao JonassonGunnar Steineck
European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)
Junmei Miao JonassonGunnar Steineck
© 2022 Meta ULC. All rights reserved