Perceptions of molecular epidemiology studies of HIV among stakeholders

Journal of Public Health Research
Cynthia SchairerSusan Little

Abstract

Background: Advances in viral sequence analysis make it possible to track the spread of infectious pathogens, such as HIV, within a population. When used to study HIV, these analyses (i.e., molecular epidemiology) potentially allow inference of the identity of individual research subjects. Current privacy standards are likely insufficient for this type of public health research. To address this challenge, it will be important to understand how stakeholders feel about the benefits and risks of such research. Design and Methods: To better understand perceived benefits and risks of these research methods, in-depth qualitative interviews were conducted with HIV-infected individuals, individuals at high-risk for contracting HIV, and professionals in HIV care and prevention. To gather additional perspectives, attendees to a public lecture on molecular epidemiology were asked to complete an informal questionnaire. Results: Among those interviewed and polled, there was near unanimous support for using molecular epidemiology to study HIV. Questionnaires showed strong agreement about benefits of molecular epidemiology, but diverse attitudes regarding risks. Interviewees acknowledged several risks, including privacy breaches and provocati...Continue Reading

Citations

Nov 30, 2018·Journal of Empirical Research on Human Research Ethics : JERHRE·Farirai MutenherwaTulio de Oliveira
Apr 5, 2019·Current Opinion in HIV and AIDS·Sanjay R MehtaSusan Little
Mar 19, 2019·Current Opinion in HIV and AIDS·Joel O WertheimArt F Y Poon
Jun 12, 2020·The Journal of Infectious Diseases·Liza DawsonJoel O Wertheim
Aug 31, 2020·Wellcome Open Research·Stephanie Johnson, Michael Parker
Mar 17, 2018·The Journal of Infectious Diseases·Art F Y Poon, Bethany L Dearlove
Sep 19, 2020·The American Journal of Bioethics : AJOB·Stephen Molldrem, Anthony K J Smith
Nov 14, 2020·Current Opinion in HIV and AIDS·Ramon Lorenzo-RedondoJudd F Hultquist

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