Perceptions of young adults with sickle cell disease concerning their disease experience

Journal of Advanced Nursing
Nadine MatthieCoretta M Jenerette

Abstract

To describe the perceptions of young adults with sickle cell disease concerning their disease experience. Sickle cell disease is a lifelong, genetic condition with both acute and chronic painful exacerbations. Little is known of the experiences of young adults with sickle cell disease. This study used a qualitative, descriptive design with semi-structured, life review interviews. Between August 2010-September 2012, purposive sampling was used to recruit participants with a known sickle cell disease diagnosis who were ages 18-35 years, were being seen in an outpatient sickle cell clinic and were English speaking. Participants provided demographic information and responded to two interviews. A content analysis was then used to interpret participants' narratives of their experiences of living with sickle cell disease. A sample of 29 young adults with sickle cell disease consisted of 79·3% females, 35·6% employed full-time or part-time, 71·6% single/never married and 57·8% with sickle cell anaemia. Their mean age was 25·8 with 13·2 years of education. Four major interview themes were identified: (1) struggles to maintain or achieve good quality of life or life satisfactions; (2) strategies to maintain self-care; (3) interruptions t...Continue Reading

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Citations

Mar 14, 2018·Occupational Therapy in Health Care·Christine BergDorothy Farrar Edwards
Apr 14, 2018·Issues in Mental Health Nursing·Dominique BulginCoretta Jenerette
Dec 10, 2017·Hematology·Jeffrey A Glassberg
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Jul 18, 2020·Clinical Journal of Oncology Nursing·Maureen Varty, Lori L Popejoy
Jun 3, 2020·Journal of Medical Internet Research·Kathleen YinAnnie Y S Lau
Nov 19, 2021·International Journal of Qualitative Studies on Health and Well-being·Julie BlamiresCatherine A Byrnes

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