Persistent family concerns in long-term care settings: meaning and management

Journal of the American Medical Directors Association
Elsa MarzialiThecla Damianakis

Abstract

The aim of this study was to understand institutional and family caregiver characteristics that contribute to the failure to resolve families' persistent complaints about nursing home care of their relatives. Key informant interviews with 9 family members who had persistent concerns about the care of their relatives were conducted. Two focus groups with 5 nurse managers provided staff perceptions of families whose persistent concerns remained unresolved. Content analysis of both individual interviews and focus groups resulted in the extraction of salient themes. Factors associated with persistent discord between families and staff included caregivers' perceptions of staff as incompetent, interfamilial conflicts, and unresolved psychosocial issues. Institutional factors contributing to persistent negative perceptions of care included staff's vulnerability in the face of challenges to their professional competence and stress due to disproportionate amounts of time spent educating and supporting health care aids to cope with distraught families. The failure to settle, in a mutually satisfactory manner, the complaints of this subgroup of families is discussed in the context of unresolved family issues that interact with institution...Continue Reading

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Citations

Nov 13, 2009·Nursing Inquiry·Lars WestinElla Danielson
May 20, 2015·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·UNKNOWN Alzheimer’s Association
Jun 19, 2013·Palliative & Supportive Care·Genevieve N Thompson, Kerstin Roger
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May 13, 2014·Alzheimer's & Dementia : the Journal of the Alzheimer's Association
Oct 4, 2015·Journal of the American Medical Directors Association·John E Morley
Mar 20, 2013·Alzheimer's & Dementia : the Journal of the Alzheimer's Association·UNKNOWN Alzheimer's Association
Aug 7, 2012·Journal of Applied Gerontology : the Official Journal of the Southern Gerontological Society·Joseph E GauglerRobert Newcomer
Oct 8, 2019·International Journal of Older People Nursing·Jacqueline EatonLee Ellington

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