Perspectives of Patients with Pre-existing Mobility Disability on the Process of Diagnosing Their Cancer.

Journal of General Internal Medicine
Nicole D AgaronnikLisa I Iezzoni

Abstract

Mobility disability is the most common disability among adult Americans, estimated at 13.7% of the US population. Cancer prevalence is higher among people with mobility disability compared with the general population, yet people with disability experience disparities in cancer screening and treatment. We explored experiences of patients with mobility disability with the process of cancer diagnosis. Open-ended individual interviews, which reached data saturation. Interviews were transcribed verbatim for conventional content analysis. We interviewed 20 participants with pre-existing mobility disability that required the use of an assistive device or assistance with performance of activities of daily living and who were subsequently diagnosed with cancer (excluding melanoma). Concerns coalesced around five broad categories: inaccessibility of medical diagnostic equipment affecting the process of cancer diagnosis, attitudes of clinical staff about accommodating disability, dismissal of cancer signs/symptoms as emotional responses to chronic health conditions, misattributing cancer signs/symptoms to underlying disability, and attitudes about pursuing legal action for substandard care. Participants provided examples of how erroneous ...Continue Reading

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