Population biobanking and international collaboration.

Pathobiology : Journal of Immunopathology, Molecular and Cellular Biology
Ma''n H ZawatiAdrian Thorogood

Abstract

Population-based biobanks promise to be important resources for genetic research. However, the study of normal genomic variation across populations requires the collection of data and biological samples from individuals on a large scale. While international collaboration has become both a scientific and an ethical imperative, international sharing of data and samples poses many challenges. Significant variation persists among the legal and ethical norms governing population biobanks in different jurisdictions. Many of these norms do not clearly provide for international access. To illustrate these problems, we collected and compared applicable legislative instruments, as well as ethical guidelines issued by national, regional, and international bodies. In addition, harmonization is faced with important limitations and may not be sufficient to ensure effective international sharing. Population biobanks are therefore looking for new ways to promote sharing and improve interoperability. The formation of biobank networks and the development of common governance tools are two approaches that are setting the groundwork for international collaboration in genetic research.

Citations

May 26, 2017·Biopreservation and Biobanking·Tong-Hong WangChuen Hsueh
Nov 3, 2016·PLoS Biology·Mary A MajumderAmy L McGuire
Mar 27, 2018·Journal of Epidemiology·Vita RoviteJanis Klovins
Jul 22, 2021·Medicine, Health Care, and Philosophy·Mantombi Maseme

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