Possible Sources of Bias in Primary Care Electronic Health Record Data Use and Reuse

Journal of Medical Internet Research
Robert A VerheijMark McGilchrist

Abstract

Enormous amounts of data are recorded routinely in health care as part of the care process, primarily for managing individual patient care. There are significant opportunities to use these data for other purposes, many of which would contribute to establishing a learning health system. This is particularly true for data recorded in primary care settings, as in many countries, these are the first place patients turn to for most health problems. In this paper, we discuss whether data that are recorded routinely as part of the health care process in primary care are actually fit to use for other purposes such as research and quality of health care indicators, how the original purpose may affect the extent to which the data are fit for another purpose, and the mechanisms behind these effects. In doing so, we want to identify possible sources of bias that are relevant for the use and reuse of these type of data. This paper is based on the authors' experience as users of electronic health records data, as general practitioners, health informatics experts, and health services researchers. It is a product of the discussions they had during the Translational Research and Patient Safety in Europe (TRANSFoRm) project, which was funded by ...Continue Reading

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Citations

Mar 22, 2019·JMIR Medical Informatics·Seth Aaron LevitinJoseph Finkelstein
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Software Mentioned

i2b2
TRANSFoRm
QResearch
ResearchOne
NIVEL

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