Post-sampling mortality and non-response patterns in the English Cancer Patient Experience Survey: Implications for epidemiological studies based on surveys of cancer patients

Cancer Epidemiology
Gary A AbelGeorgios Lyratzopoulos

Abstract

Surveys of the experience of cancer patients are increasingly being introduced in different countries and used in cancer epidemiology research. Sampling processes, post-sampling mortality and survey non-response can influence the representativeness of cancer patient surveys. We examined predictors of post-sampling mortality and non-response among patients initially included in the sampling frame of the English Cancer Patient Experience Survey. We also compared the respondents' diagnostic case-mix to other relevant populations of cancer patients, including incident and prevalent cases. Of 109,477 initially sampled cancer patients, 6273 (5.7%) died between sampling and survey mail-out. Older age and diagnosis of brain, lung and pancreatic cancer were associated with higher risk of post-sampling mortality. The overall response rate was 67% (67,713 respondents), being >70% for the most affluent patients and those diagnosed with colon or breast cancer and <50% for Asian or Black patients, those under 35 and those diagnosed with brain cancer. The diagnostic case-mix of respondents varied substantially from incident or prevalent cancer cases. Respondents to the English Cancer Patient Experience Survey represent a population of recentl...Continue Reading

References

Dec 1, 2005·Health Services Research·Marc N ElliottRon D Hays
Jan 22, 2008·Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer·Ulrich R KleebergMonika Behrens
Oct 31, 2008·The New England Journal of Medicine·Ashish K JhaArnold M Epstein
Jun 16, 2010·Journal of Evaluation in Clinical Practice·Peter B Madden, Elizabeth A Davies
Aug 18, 2010·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·John Z AyanianDavid P Harrington
Dec 18, 2013·Future Oncology·Gary A AbelGeorgios Lyratzopoulos
Feb 5, 2014·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Michelle van RynSteven B Clauser
Jun 12, 2014·British Journal of Cancer·L J L ForbesA J Ramirez
Jul 17, 2014·JAMA : the Journal of the American Medical Association·Ashish K Jha, Alan M Zaslavsky
Sep 2, 2015·British Journal of Cancer·Debra A HowellLindsay J L Forbes
Apr 1, 2013·Journal of Health Services Research & Policy·Peter GriffithsJessica Corner

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Citations

Dec 20, 2016·PloS One·Evrim OralElizabeth T H Fontham
Sep 26, 2017·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Catherine L SaundersGeorgios Lyratzopoulos
Apr 26, 2017·The British Journal of General Practice : the Journal of the Royal College of General Practitioners·Gary A AbelGeorgios Lyratzopoulos
Feb 27, 2016·The British Journal of General Practice : the Journal of the Royal College of General Practitioners·Silvia C MendoncaGeorgios Lyratzopoulos
Jul 27, 2018·Frontline Gastroenterology·Theodosia SalikaGeorgios Lyratzopoulos
Oct 12, 2018·European Journal of Cancer Care·Mette SandagerPeter Vedsted

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