PMID: 11903543Mar 21, 2002Paper

Potential validity of conducting research on headache in internet populations

Headache
Leslie LenertChristy M Jackson

Abstract

While it is technically feasible to conduct migraine research on the Internet, can one be sure that the subjects who participate actually have the disorder? We examined this issue in 109 sequential subjects in an Internet study of migraineurs' symptoms. The increasing use of the Internet by the US population provides an opportunity for using this medium in clinical research, but, to be useful, the results of such research must be valid and generalizable. Using postings to Internet newsgroups of migraineurs, we recruited subjects to a migraine research site. We examined reported symptoms by comparing them with the International Headache Society's criteria for diagnosis of migraine and by subjective review by a neurologist. We also attempted to contact the subject's primary care physicians to confirm their diagnosis. We found considerable evidence for the validity of the participants' self-reported diagnoses. Most subjects with professed migraine reported quality of pain (97%) and associated symptoms (92%) consistent with that diagnosis, and review of their symptoms and questionnaire responses by the neurologist suggested that almost all subjects (97%) had migraine. Personal physicians confirmed a diagnosis of migraine in 90% of ...Continue Reading

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Citations

Dec 10, 2008·Journal of Homosexuality·Todd M KlineMerilyne C Waldo
Nov 19, 2002·Annals of Behavioral Medicine : a Publication of the Society of Behavioral Medicine·Leslie Lenert, Steven Skoczen
Sep 21, 2004·The Canadian Journal of Neurological Sciences. Le Journal Canadien Des Sciences Neurologiques·K E GordonE P Wood
Oct 26, 2005·Psychotherapy and Psychosomatics·Paul M G Emmelkamp
Mar 27, 2003·Headache·Gerhard AnderssonLars Ström
Feb 1, 2005·Behaviour Research and Therapy·Trishul Devineni, Edward B Blanchard
Nov 12, 2016·The Canadian Journal of Neurological Sciences. Le Journal Canadien Des Sciences Neurologiques·Serena L OrrIan Colman
Sep 15, 2011·Cephalalgia : an International Journal of Headache·W P J van OosterhoutG M Terwindt
Dec 15, 2007·Journal of Child Neurology·Paula BrnaJoseph Dooley
Nov 17, 2015·Cephalalgia : an International Journal of Headache·Joseph M DooleyStefan Kuhle
Mar 4, 2009·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Ken SteinJohn Brazier

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