Predictors of health-related quality of life in children with chronic heart disease

Cardiology in the Young
M NiemitzL Goldbeck

Abstract

Chronic paediatric heart disease is often associated with residual symptoms, persisting functional restrictions, and late sequelae for psychosocial development. It is, therefore, increasingly important to evaluate the health-related quality of life of children and adolescents with chronic heart disease. The aim of this study was to determine medical and socio-demographic variables affecting health-related quality of life in school-aged children and adolescents with chronic heart disease. Patients and methods The Pediatric Cardiac Quality of Life Inventory was administered to 375 children and adolescents and 386 parental caregivers. Medical information was obtained from the charts. The socio-demographic information was provided by the patients and caregivers. Greater disease severity, low school attendance, current cardiac medication, current parental employment, uncertain or limited prognosis, history of connection to a heart-lung machine, number of nights spent in a hospital, and need for treatment in a paediatric aftercare clinic independently contributed to lower health-related quality of life (self-report: R2=0.41; proxy-report: R2=0.46). High correlations between self-reports and parent-proxy reports indicated concordance ...Continue Reading

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Citations

Feb 8, 2019·Perspectives in Psychiatric Care·Eman Khamis Alnazly, Amjed Abojedi
May 5, 2021·World Journal for Pediatric & Congenital Heart Surgery·Julie CleuziouRüdiger Lange
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