Preference-based Glaucoma-specific Health-related Quality of Life Instrument: Development of the Health Utility for Glaucoma

Journal of Glaucoma
Sergei MuratovF Xie

Abstract

To develop a descriptive system for a glaucoma-specific preference-based health-related quality of life (HRQoL) instrument: the Health Utility for Glaucoma (HUG-5). The descriptive system was developed in 2 stages: item identification and item selection. A systematic literature review of HRQoL assessment of glaucoma was conducted using a comprehensive search strategy. Purposeful sampling was used to recruit patients with different clinical characteristics. Relevant items were presented to glaucoma patients through face-to-face, semistructured interviews. Framework methodology was applied to analyze interview content. The recurring themes identified through an iterative content analysis represented topics of most importance and relevance to patients. These themes formed the domains of the HUG-5 descriptive system. Three versions of the descriptive system, differing in explanatory detail, were pilot tested using a focus group. The literature review identified 19 articles which contained 266 items. These items were included for the full-text review and were used to develop an interview guide. From 12 patient interviews, 22 themes were identified and grouped into 5 domains that informed the 5 questions of the descriptive system. Th...Continue Reading

References

Oct 28, 1999·Journal of Health Services Research & Policy·J BrazierC Green
Jul 27, 2001·Archives of Ophthalmology·C M MangioneUNKNOWN National Eye Institute Visual Function Questionnaire Field Test Investigators
Apr 10, 2002·Journal of Health Economics·John BrazierMark Deverill
Apr 20, 2007·Medical Care·Darren A DeWaltUNKNOWN PROMIS Cooperative Group
Aug 19, 2007·Optometry and Vision Science : Official Publication of the American Academy of Optometry·Jennifer M BurrMandy Ryan
Aug 30, 2007·Acta Ophthalmologica·Alain BéchetoilleJean-François Rouland
Jan 25, 2008·BMC Ophthalmology·Philip SevernCarl May
Sep 15, 2011·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Rosalie VineyJulie Ratcliffe
Oct 4, 2011·American Journal of Ophthalmology·Rohit VarmaSameer Kotak
Apr 7, 2012·Ophthalmology·Pradeep Y RamuluDavid S Friedman
Apr 18, 2013·The British Journal of Ophthalmology·M Q RahmanD M I Montgomery
Sep 21, 2013·BMC Medical Research Methodology·Nicola K GaleSabi Redwood
Nov 11, 2016·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Paula K LorgellyUNKNOWN Cancer 2015 investigators
Nov 30, 2016·Journal of Ophthalmology·Paul HarasymowyczRadmila Day
Dec 30, 2016·Medicine·Ricardo Augusto Paletta GuedesAlfredo Chaoubah
Apr 15, 2017·Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research·Brendan MulhernJohn Brazier

❮ Previous
Next ❯

Citations

Feb 28, 2020·Journal of Managed Care & Specialty Pharmacy·Michael SerbinAnirban Basu

❮ Previous
Next ❯

Software Mentioned

NVivo11Pro

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.