Pregnant women's experiences, needs, and preferences regarding information about malformations detected by ultrasound scan

Sexual & Reproductive Healthcare : Official Journal of the Swedish Association of Midwives
Nina AsplinSusanne Georgsson Öhman

Abstract

The aim of the study was to explore pregnant women's experiences of received information in relation to fetal malformation detected on ultrasound. An exploratory descriptive design was used. Semi-structured interviews with women who continued their pregnancy and women who chose to terminate were audiotaped, the information pathway described, and the text subjected to qualitative content analysis. Most of the women who expected a baby with an abnormality experienced the information given as insufficient, often misleading, conflicting, or incoherent, and sometimes negative. Important factors for interaction between women and caregivers were timing, duration, and manner of the initial dialog and ongoing support. Positive interactions improved the women's ability to understand the information, fostered feelings of trust and safety which reduced their anxiety. Women expressed dissatisfaction both regarding the care-givers' methods of giving information and apply for information from different specialists and continuity. The study highlights important factors which may be helpful to the professionals for improving the information to this vulnerable group of women.

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Citations

May 15, 2013·Sexual & Reproductive Healthcare : Official Journal of the Swedish Association of Midwives·Nina AsplinSusanne Georgsson Ohman
Dec 24, 2015·BMC Pregnancy and Childbirth·Marie OscarssonKatarina Swahnberg
Sep 26, 2015·BMC Medical Informatics and Decision Making·Maria Esther Leiva PortocarreroFrance Légaré
Jan 4, 2015·Reproductive Health Matters·Caroline LafargePauline Fox
May 31, 2016·The Journal of Maternal-fetal & Neonatal Medicine : the Official Journal of the European Association of Perinatal Medicine, the Federation of Asia and Oceania Perinatal Societies, the International Society of Perinatal Obstetricians·Charlotte WoolAnne B Woods
Jun 15, 2017·Prenatal Diagnosis·Stina LouCamilla Palmhøj Nielsen
Apr 2, 2019·The European Journal of Contraception & Reproductive Health Care : the Official Journal of the European Society of Contraception·Kornelia ZarebaGrzegorz Jakiel
May 6, 2020·JAMA Network Open·Kelly W HarrisEllen Wright Clayton
Mar 23, 2017·BMC Pregnancy and Childbirth·Maria Esther Leiva PortocarreroFrance Légaré
May 20, 2020·International Journal of Environmental Research and Public Health·Cayetano Fernández-SolaJosé Granero-Molina
Dec 11, 2014·Acta Obstetricia Et Gynecologica Scandinavica·Afsaneh Hayat RoshanaiPeter Lindgren
Apr 27, 2018·Journal of Medical Internet Research·Samira Abbasgholizadeh RahimiFrance Légaré
Mar 13, 2013·International Journal of Gynaecology and Obstetrics : the Official Organ of the International Federation of Gynaecology and Obstetrics·Renata P GorayebGeraldo Duarte
Dec 19, 2018·International Journal of Environmental Research and Public Health·Kornelia ZarębaGrzegorz Jakiel
May 7, 2016·Prenatal Diagnosis·Sarah MarokakisSean E Kennedy
Dec 21, 2019·BMC Pregnancy and Childbirth·Marcos Camacho-ÁvilaJosé Manuel Hernández-Padilla
Oct 23, 2020·BMC Pregnancy and Childbirth·Magnhild ReisoAud Johannessen
Jun 6, 2021·Patient Education and Counseling·Titilayo Tatiana AgbadjeFrance Légaré
Apr 10, 2017·Journal of Obstetric, Gynecologic, and Neonatal Nursing : JOGNN·Joana MendesCharlotte Wool

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