Preparedness for caregiving: A phenomenological study of the experiences of rural Australian family palliative carers

Health & Social Care in the Community
Naomi Mason, Suzanne Hodgkin

Abstract

The care of people with life-limiting illnesses is increasingly moving away from an acute setting into the community. Thus, the caregiver role is growing in significance and complexity. The importance of preparing and supporting family caregivers is well established; however, less is known about the impact of rurality on preparedness and how preparedness shapes the caregiving continuum including bereavement. The aim of this study, conducted in 2017, was to explore how bereaved rural family palliative carers described their preparedness for caregiving. Interpretative phenomenological analysis was employed following semi-structured interviews with four women and six men (N = 10, aged 55-87 years). Participants were recruited voluntarily through past engagement with a Regional Specialist Palliative Care Consultancy Service in Australia. The experiences of caregivers illustrated a lack of preparedness for the role and were characterised by four major themes: Into the unknown, Into the battle, Into the void and Into the good. The unknown was associated with a lack of knowledge and skills, fear, prognostic communication, exclusion, emotional distress and grief experience. Battles were experienced in a number of ways: intrapsychically...Continue Reading

References

Jun 9, 1998·Palliative Medicine·J Seymour, D Clark
Feb 28, 2006·Journal of Palliative Medicine·Susan C McMillan
Oct 17, 2006·Journal of Palliative Medicine·Randy S HebertRobert M Arnold
Aug 29, 2007·Qualitative Health Research·Trudy Read, Judith Wuest
Nov 15, 2007·Qualitative Health Research·Helene Starks, Susan Brown Trinidad
Jun 10, 2008·Journal of Pain and Symptom Management·Randy S HebertRobert M Arnold
Aug 20, 2008·BMC Palliative Care·Peter HudsonSanchia Aranda
Dec 19, 2008·Qualitative Health Research·Inger JamesBritt-Marie Ternestedt
Apr 7, 2009·Journal of Pain and Symptom Management·Peter HudsonMaxine Braithwaite
Dec 21, 2010·Journal of Gerontological Social Work·John G Cagle, Pamela J Kovacs
Sep 26, 2012·Journal of Family Nursing·Carole A RobinsonJoan L Bottorff
Apr 13, 2013·Palliative Medicine·Christine SandersonMelanie A Price
Jun 20, 2013·Palliative Medicine·Sheila Payne, Gunn Grande
Aug 8, 2013·Palliative & Supportive Care·Allison J ApplebaumWilliam Breitbart
Oct 23, 2013·Journal of Pain and Symptom Management·Natasha MichaelJosephine Clayton
Jun 10, 2014·Palliative & Supportive Care·Maja HolmJoakim Ohlen
Aug 16, 2014·The Australian Journal of Rural Health·Isabelle HatcherJacqui Tarrant
Oct 29, 2014·International Journal of Palliative Nursing·Anna Janze, Anette Henriksson
Feb 12, 2015·Palliative & Supportive Care·Melissa P MastersonDavid W Kissane
Mar 25, 2015·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·J Nicholas Dionne-OdomMarie A Bakitas
Nov 13, 2015·The Medical Journal of Australia·Jennifer Philip, Anna Collins

❮ Previous
Next ❯

Citations

Apr 23, 2020·Health & Social Care in the Community·Aspa SarrisBrooke Ferguson
Mar 20, 2021·Australasian Journal on Ageing·Rachel WintertonKathleen Brasher
Apr 29, 2021·The American Journal of Hospice & Palliative Care·Yun Cai, Nasreen Lalani
May 7, 2021·Health & Social Care in the Community·Rachel QuigleyCarolyn Ehrlich
Jul 21, 2021·Journal of Mental Health·Selwyn Stanley, Sujeetha Balakrishnan

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.