Preparing for patient partnership: A scoping review of patient partner engagement and evaluation in research.

Health Expectations : an International Journal of Public Participation in Health Care and Health Policy
Marissa BirdSandra L Carroll

Abstract

Realizing patient partnership in research requires a shift from patient participation in ancillary roles to engagement as contributing members of research teams. While engaging patient partners is often discussed, impact is rarely measured. Our primary aim was to conduct a scoping review of the impact of patient partnership on research outcomes. The secondary aim was to describe barriers and facilitators to realizing effective partnerships. A comprehensive bibliographic search was undertaken in EBSCO CINAHL, and Embase, MEDLINE and PsycINFO via Ovid. Reference lists of included articles were hand-searched. Included studies were: (a) related to health care; (b) involved patients or proxies in the research process; and (c) reported results related to impact/evaluation of patient partnership on research outcomes. Data were extracted from 14 studies meeting inclusion criteria using a narrative synthesis approach. Patient partners were involved in a range of research activities. Results highlight critical barriers and facilitators for researchers seeking to undertake patient partnerships to be aware of, such as power imbalances between patient partners and researchers, as well as valuing of patient partner roles. Addressing power dy...Continue Reading

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Citations

Jan 10, 2021·Research Involvement and Engagement·Lenka VojtilaPeter Selby
Mar 18, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Clayon B HamiltonLinda C Li
Mar 18, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Sebastian LindblomCharlotte Ytterberg
Apr 25, 2021·Annals of Epidemiology·Jennifer SalernoEdward S Peters
May 1, 2021·Best Practice & Research. Clinical Rheumatology·Niti Goel
May 12, 2021·Research Involvement and Engagement·Tamara L McCarronMaria Jose Santana
May 12, 2021·Research Involvement and Engagement·Colin MacarthurNicola L Jones
May 29, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Per Koren SolvangHelene Lundgaard Søberg
May 29, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Catherine BodenChristine Stobart
Jun 11, 2021·Journal of Participatory Medicine·Ursula EllisMathew Vis-Dunbar
Jun 22, 2021·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Tamara L McCarronMaria Santana

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Software Mentioned

Distiller SR
Public and Patient Engagement and Evaluation Tool ( PPEET )
INVOLVE
Ovid

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