Primary Sjögren's syndrome: fatigue is an ever-present, fluctuating, and uncontrollable lack of energy

Arthritis Care & Research
Anne Marit MengshoelRoald Omdal

Abstract

To examine how fatigue may differ from ordinary tiredness in patients with primary Sjögren's syndrome (SS). A purposive, heterogeneous sample of individuals with primary SS who had participated in a study that examined the effects of medication on fatigue was asked to participate in individual interviews. Patients were asked about their fatigue before and after the onset of illness, changes due to medications, and how fatigue was experienced in daily life. An inductive thematic analysis founded on a social constructionist perspective was performed. Five women and 4 men ages 27-76 years participated. Two themes were identified. "A heavy, resistant body and ever-present lack of vitality" represented a profound, ever-present lack of energy along with an unfamiliar bodily heaviness quite different from the experience after alleviation by the drug and being healthy. The patients had scaled down their everyday life in different ways to manage this lack of energy. "Unpredictable and uncontrollable fluctuations in fatigue" expressed how the level of fatigue fluctuated from day to day and even within a particular day. The informants tried to portion out their energy without knowing exactly how much energy they would have at any time. On...Continue Reading

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Citations

Sep 1, 2015·Arthritis Care & Research·Theofanis KarageorgasClio P Mavragani
Jan 6, 2015·The British Journal of Dermatology·I M SkoieR Omdal
Dec 30, 2014·Journal of Clinical Rheumatology : Practical Reports on Rheumatic & Musculoskeletal Diseases·Juan Jakez-OcampoLuis Llorente
Jul 20, 2016·Rheumatic Diseases Clinics of North America·Malin V Jonsson, Chiara Baldini
Feb 28, 2016·Innate Immunity·Kjetil BårdsenRoald Omdal
Mar 1, 2019·Rheumatology·Roald OmdalKatrine Brække Norheim
Feb 3, 2016·BMC Oral Health·Di Ying J NgoShelagh Ferguson
Apr 19, 2020·Current Opinion in Neurology·Roald Omdal
Oct 17, 2017·Rheumatology Advances in Practice·Solveig K HammondsRoald Omdal
Dec 20, 2020·Brain Stimulation·Ana Carolina Pereira Nunes PintoVirgínia Fernandes Moça Trevisani
Jul 13, 2021·Frontiers in Immunology·Elisabeth MælandMalin V Jonsson
Nov 9, 2021·Clinical Rheumatology·Luciana Paula DardinVirginia Fertnandes Moça Trevisani

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