PMID: 16639068Apr 28, 2006Paper

Problems experienced by patients receiving parenteral nutrition at home: results of an open interview study

JPEN. Journal of Parenteral and Enteral Nutrition
Getty Huisman-de WaalTheo van Achterberg

Abstract

Home parenteral nutrition (HPN) is offered to patients who are unable to absorb sufficient nourishment from normal oral food intake or tube feeding. Major causes include severe motility disorders and limited resorption surface in the small intestine. HPN is a lifesaving therapy but has severe consequences on daily life. The aim of this study was to make an inventory of the problems experienced by patients receiving HPN. Open interviews were held with 48 patients from the 2 major centers for HPN in the Netherlands, centered around the question: Which 3 HPN problems have the most severe impact on your daily life? Data were analyzed using content analysis. The respondents mentioned 7 central problems: negative emotions, physical problems, social limitations, dependence on others, incapability, complications, and patient-care provider problems. In addition, practical problems were mentioned: sleeping problems, financial problems, and the "hospital atmosphere" at home. The latter issues formed less of a problem for the patients. The main underlying elements in the lives of many HPN patients appeared to be loss, longing, and grief. In contrast, a smaller proportion of the patients expressed that they had clearly adapted to life with ...Continue Reading

References

May 1, 1989·JPEN. Journal of Parenteral and Enteral Nutrition·E T HerfindalA Wong
Nov 26, 1998·JPEN. Journal of Parenteral and Enteral Nutrition·A DiMartiniK Abu-Elmagd
May 14, 1999·Gut·P B JeppesenP B Mortensen
Feb 16, 2000·European Journal of Cancer : Official Journal for European Organization for Research and Treatment of Cancer (EORTC) [and] European Association for Cancer Research (EACR)·F I Fawzy
Dec 7, 2002·Clinical Nutrition : Official Journal of the European Society of Parenteral and Enteral Nutrition·F BozzettiP Thul
Sep 27, 2003·Clinical Nutrition : Official Journal of the European Society of Parenteral and Enteral Nutrition·E CarlssonS Nordgren
May 11, 2004·Patient Education and Counseling·Mirjana Pibernik-OkanovicZeljko Metelko
Mar 24, 2005·Clinical Nutrition : Official Journal of the European Society of Parenteral and Enteral Nutrition·Anke PersoonTheo van Achterberg

❮ Previous
Next ❯

Citations

Feb 12, 2010·International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care·Paul MasottiMichael Green
Sep 24, 2010·International Journal of Behavioral Medicine·Getty Huisman-de WaalLisette Schoonhoven
Sep 18, 2012·Clinical Nutrition : Official Journal of the European Society of Parenteral and Enteral Nutrition·A M C RoskottJ E H M Hoekstra-Weebers
Mar 10, 2009·Clinical Nutrition : Official Journal of the European Society of Parenteral and Enteral Nutrition·D A ElphickM E McAlindon
Jul 1, 2015·Journal of Infusion Nursing : the Official Publication of the Infusion Nurses Society·Marion F Winkler, Carol E Smith
Sep 2, 2011·JPEN. Journal of Parenteral and Enteral Nutrition·Getty Huisman-de WaalGeert Wanten
Jul 16, 2010·JPEN. Journal of Parenteral and Enteral Nutrition·Marion F WinklerRiva Touger-Decker
Nov 20, 2013·JPEN. Journal of Parenteral and Enteral Nutrition·Darlene G KellyMarion F Winkler
Nov 23, 2006·Nutrition in Clinical Practice : Official Publication of the American Society for Parenteral and Enteral Nutrition·Marion F WinklerCarol E Smith
Jun 1, 2007·Current Opinion in Organ Transplantation·Andre Van Gossum
Feb 5, 2019·JPEN. Journal of Parenteral and Enteral Nutrition·Sharon CareyCherry Koh
Oct 11, 2017·Nutrition in Clinical Practice : Official Publication of the American Society for Parenteral and Enteral Nutrition·Eve-Lynn NelsonCarol E Smith
Jul 24, 2020·JPEN. Journal of Parenteral and Enteral Nutrition·Dominika KotMiriam Theilla
Jun 5, 2018·Journal of Technology in Behavioral Science·Natasia AdamsCarol E Smith
Aug 12, 2020·Journal of Human Nutrition and Dietetics : the Official Journal of the British Dietetic Association·A M SowerbuttsS Lal
Mar 1, 2021·Clinical Nutrition : Official Journal of the European Society of Parenteral and Enteral Nutrition·Anne Marie SowerbuttsSorrel Burden

❮ Previous
Next ❯

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Clinical Nutrition : Official Journal of the European Society of Parenteral and Enteral Nutrition
Anke PersoonTheo van Achterberg
Clinical Nutrition : Official Journal of the European Society of Parenteral and Enteral Nutrition
Getty Huisman-de WaalTheo van Achterberg
Applied Physiology, Nutrition, and Metabolism = Physiologie Appliquée, Nutrition Et Métabolisme
Donald R Duerksen
Clinical Nutrition : Official Journal of the European Society of Parenteral and Enteral Nutrition
Y SchutzE Jéquier
Clinical Nutrition : Official Journal of the European Society of Parenteral and Enteral Nutrition
J BaxterAlastair W McKinlay
© 2022 Meta ULC. All rights reserved