Protocol: Evaluating the impact of a nation-wide train-the-trainer educational initiative to enhance the quality of palliative care for children with cancer

BMC Palliative Care
Kimberley WidgerAdam Rapoport

Abstract

There are identified gaps in the care provided to children with cancer based on the self-identified lack of education for health care professionals in pediatric palliative care and in the perceptions of bereaved parents who describe suboptimal care. In order to address these gaps, we will implement and evaluate a national roll-out of Education in Palliative and End-of-Life Care for Pediatrics (EPEC®-Pediatrics), using a 'Train-the-Trainer' model. In this study we are using a pre- post-test design and an integrated knowledge translation approach to assess the impact of the educational roll-out in four areas: 1) self-assessed knowledge of health professionals; 2) knowledge dissemination outcomes; 3) practice change outcomes; and 4) quality of palliative care. The quality of palliative care will be assessed using data from three sources: a) parent and child surveys about symptoms, quality of life and care provided; b) health record reviews of deceased patients; and c) bereaved parent surveys about end-of-life and bereavement care. After being trained in EPEC®-Pediatrics, 'Master Facilitators' will train 'Regional Teams' affiliated with 16 pediatric oncology programs in Canada. Each team will consist of three to five health profess...Continue Reading

References

Feb 3, 2000·The New England Journal of Medicine·J WolfeJ C Weeks
Jun 28, 2000·Journal of Pain and Symptom Management·J J CollinsR K Portenoy
Jan 3, 2001·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·J M HildenR J Mayer
Dec 14, 2004·Journal of Palliative Medicine·Katya RobinsonLinda L Emanuel
Sep 21, 2005·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Ulrika KreicbergsJan-Inge Henter
Sep 15, 2006·Pediatric Blood & Cancer·J M J TheunissenC H M van den Ende
Oct 19, 2006·Journal of Psychosocial Oncology·Natarlie deCinqueSamar Aoun
Apr 1, 2008·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Joanne WolfeJane C Weeks
Oct 19, 2011·CMAJ : Canadian Medical Association Journal = Journal De L'Association Medicale Canadienne·Deborah TomlinsonLillian Sung
Nov 24, 2012·The Journal of Continuing Education in the Health Professions·Jennifer PearceJonathan I Bisson
Nov 28, 2012·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Alisha KassamJoanne Wolfe
Jan 23, 2013·Nature Reviews. Clinical Oncology·Elisha Waldman, Joanne Wolfe
Mar 13, 2014·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Joanne WolfeVeronica Dussel
Nov 18, 2014·Journal of Palliative Medicine·Stefan J FriedrichsdorfJoanne Wolfe

❮ Previous
Next ❯

Citations

Jul 13, 2017·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Erica C KayeJustin N Baker
Dec 1, 2017·Current Opinion in Pediatrics·Jennifer M SnamanJoanne Wolfe
Feb 15, 2017·BMC Palliative Care·Tracey McConnell, Sam Porter
Jul 28, 2020·Journal of Pain and Symptom Management·Andrea CuvielloRenee D Boss
Dec 16, 2019·Journal of Pain and Symptom Management·Andrea CuvielloRenee D Boss
Oct 17, 2020·Journal of Hospice and Palliative Nursing : JHPN : the Official Journal of the Hospice and Palliative Nurses Association·June Nicole ReesPaula Murray

❮ Previous
Next ❯

Software Mentioned

Pediatrics
Research Electronic Data Capture ( [UNK] )
EPEC®

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.

Related Papers

Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses
Kathleen MontgomeryVerna L Hendricks-Ferguson
Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology
Alisha KassamJoanne Wolfe
© 2021 Meta ULC. All rights reserved