Providing person-centered care for patients with complex healthcare needs: A qualitative study

PloS One
Vincent J T PetersE de Vries

Abstract

People with chronic conditions have complex healthcare needs that lead to challenges for adequate healthcare provision. Current healthcare services do not always respond adequately to their needs. A modular perspective, in particular providing visualization of the modular service architecture, is promising for improving the responsiveness of healthcare services to the complex healthcare needs of people with chronic conditions. The modular service architecture provides a comprehensive representation of the components and modules of healthcare provision. In this study, we explore this further in a qualitative multiple case study on healthcare provision for children with Down syndrome in the Netherlands. Data collection for four cases involved 53 semi-structured interviews with healthcare professionals and 21 semi-structured interviews with patients (the parents of children with Down syndrome as proxy). In addition, we gathered data by means of practice observations and analysis of relevant documents. The interviews were audio-recorded, transcribed verbatim and analyzed utilizing the Miles and Huberman approach. Our study shows that the perspectives on healthcare provision of professionals and patients differ substantially. The vi...Continue Reading

References

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Dec 14, 2019·Journal of Applied Research in Intellectual Disabilities : JARID·Francine A van den Driessen MareeuwEsther de Vries

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