Psychological and psychotherapeutic approaches for people with motor neuron disease: A qualitative study

Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration
Mary RabbitteMichael Keane

Abstract

The aim of the study was to review current psychological and psychotherapeutic approaches for people with MND used by therapists in Ireland and to gain an insight into approaches used elsewhere. We used a qualitative study collecting data from eight therapists in Ireland and two therapists in the UK and Italy using semi-structured interviews and analysed the results using principles of grounded theory. Therapists' approaches included supporting the person in the 'here and now' by providing a 'fine focus' on what they can still do, re-affirming the person in their ability to have an active role in their life and supporting the person in exploring their emotions. The desired outcome was to provide the person with space to talk, express feelings and be able to self-direct. In conclusion, there is no consensus about a specific approach, due to the complexity of the disease and the variety of presentations. Different approaches may be required during disease progression. The findings indicate that therapists would benefit from having experience of MND, the limitations in mobility, communication and cognitive processing.

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Citations

Jul 13, 2019·Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration·Kirsty R WeeksVanessa Lawrence
Jul 14, 2020·Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration·Nicolò ZarottiJane Simpson
Feb 6, 2019·Palliative Care·David J Oliver
Jan 16, 2021·Breathe·Neeraj M ShahGeorgios Kaltsakas

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