Psychological experience of parents of children with type 1 diabetes: a systematic mixed-studies review.

The Diabetes Educator
Robin WhittemoreMargaret Grey

Abstract

The purpose of this review is to describe the prevalence of psychological distress in parents of children with type 1 diabetes (T1DM), the relationship between parental psychological distress and health outcomes, and parents' psychological experience of having a child with T1DM. Clinical and research implications are presented. A systematic mixed-studies review was undertaken to review the quantitative and qualitative research on the parental experience of having a child with T1DM. A total of 34 articles met the inclusion criteria and were included in the review. The prevalence of parental psychological distress across all studies ranged from 10% to 74%, with an average of 33.5% of parents reporting distress at diagnosis and 19% of parents reporting distress 1 to 4 years after diagnosis. Parental psychological distress in parents of children with T1DM, regardless of how it was defined, was associated with higher child self-report of stress and depressive symptoms, more problematic child behavior, and lower child self-report of quality of life. Parental psychological distress also had negative effects on diabetes management. Themes of the qualitative synthesis indicated that parents perceived T1DM as a difficult diagnosis that c...Continue Reading

References

Sep 1, 1995·Journal of Advanced Nursing·D L HattonA M Hughes
May 1, 1996·Archives of Disease in Childhood·R VinerP Trudinger
Apr 1, 1996·Journal of Pediatric Nursing·M S Faulkner
Nov 11, 1998·Journal of the American Academy of Child and Adolescent Psychiatry·W R BeardsleeT R Gladstone
Feb 2, 1995·Children's Health Care : Journal of the Association for the Care of Children's Health·J R RodrigueP Fishel
Jul 14, 2000·Nursing & Health Sciences·S M SeppänenM J Nikkonen
Mar 22, 2001·Journal of Pediatric Psychology·R StreisandA E Kazak
Sep 14, 2002·Journal of Pediatric Psychology·Markus A LandoltFelix H Sennhauser
Sep 19, 2002·Journal for Specialists in Pediatric Nursing : JSPN·Susan Sullivan-BolyaiMargaret Grey
Jan 30, 2003·Journal of Child Psychology and Psychiatry, and Allied Disciplines·Jeffrey J WoodBrian C Chu
Mar 1, 2003·Journal of Pediatric Nursing·S Sullivan-BolyaiM Grey
Apr 25, 2003·The Journal of Pediatrics·Lori M B LaffelBarbara J Anderson
May 8, 2004·Journal of Pediatric Psychology·Alison E MellinJoan M Patterson
May 25, 2004·Diabetic Medicine : a Journal of the British Diabetic Association·L LowesJ W Gregory
Jun 24, 2004·The Diabetes Educator·Susan Sullivan-BolyaiWilliam Tamborlane
Apr 7, 2005·Journal of Advanced Nursing·Lesley LowesPatricia Lyne
Jun 22, 2005·Journal of the American Academy of Child and Adolescent Psychiatry·Markus A LandoltFelix H Sennhauser
Sep 24, 2005·Diabetic Medicine : a Journal of the British Diabetic Association·T A ArmourL Fisher
Oct 6, 2005·Journal of Pediatric Health Care : Official Publication of National Association of Pediatric Nurse Associates & Practitioners·Lynda Stallwood
Nov 5, 2005·Journal of Advanced Nursing·Robin Whittemore, Kathleen Knafl
Dec 24, 2005·MCN. the American Journal of Maternal Child Nursing·Susan Sullivan-BolyaiMicaela Bayard
Jul 5, 2006·Pediatrics·Ardis L OlsonJames Hurley
Feb 1, 2007·Journal of Pediatric Psychology·Linda D CameronDeborah J Wiebe
Nov 10, 2007·Journal of Pediatric Psychology·Sarah S JaserMargaret Grey
Mar 21, 2009·The Diabetes Educator·Leesa A McBroom, Maithe Enriquez
Apr 29, 2009·Journal of Advanced Nursing·Susan BowesJohn W Gregory
May 5, 2009·Children's Health Care : Journal of the Association for the Care of Children's Health·Margaret Grey
Jun 3, 2009·Research in Nursing & Health·Margaret GreyJames Dziura
Jul 28, 2009·Families, Systems & Health : the Journal of Collaborative Family Healthcare·Maureen C MonaghanRandi Streisand
Aug 4, 2009·Journal of Clinical Nursing·Marie MarshallAilsa Brotherton
Nov 6, 2009·Journal of Pediatric Psychology·Sarah S Jaser, Margaret Grey
Jan 6, 2010·Families, Systems & Health : the Journal of Collaborative Family Healthcare·Stephanie J MitchellRandi Streisand

❮ Previous
Next ❯

Citations

Oct 15, 2013·Social Work in Health Care·David B NicholasBarbara Paterson
Nov 24, 2012·Diabetology & Metabolic Syndrome·Fani Eta Korn MalerbiUNKNOWN Brazilian Type 1 Diabetes Study Group (BrazDiab1SG)
Feb 20, 2013·Maternal and Child Health Journal·Sarah S JaserMargaret Grey
Jan 15, 2014·Nutrition, Metabolism, and Cardiovascular Diseases : NMCD·V CherubiniUNKNOWN SHIP-D Study Group
Jul 11, 2014·Current Diabetes Reports·Randi Streisand, Maureen Monaghan
Sep 13, 2014·Current Diabetes Reports·Mackenzie T YoungSarah S Jaser
Feb 13, 2016·Journal of Pediatric Psychology·Danielle HesslerNicole Johnson
Feb 16, 2013·Critical Care Nursing Clinics of North America·Barb Schreiner
Mar 12, 2016·Journal of Neurology·Erik LandfeldtKatharine Bushby
May 25, 2013·Diabetic Medicine : a Journal of the British Diabetic Association·K Kovacs BurnsUNKNOWN DAWN2 Study Group
May 21, 2013·Cell Biology International·Jiang-Ping SongXiao-Rui Geng
Jul 31, 2014·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·David RankinJulia Lawton
Mar 30, 2016·Patient Education and Counseling·Neesha RamchandaniSusan Sullivan-Bolyai
Jul 8, 2015·Journal for Specialists in Pediatric Nursing : JSPN·Stephanie TierneyPeter Callery
May 17, 2015·Journal of Pediatric Psychology·Maureen MonaghanRandi Streisand
Sep 26, 2015·Diabetes Care·Diane K WherrettUNKNOWN Type 1 Diabetes TrialNet Study Group
Sep 24, 2015·Scandinavian Journal of Caring Sciences·Caisa LindströmAnnika Lindahl Norberg
Jun 24, 2015·International Journal of Endocrinology·Ilias MigdalisHelen Vlassara
Jun 20, 2015·International Journal of Endocrinology·Alena SpirkovaStepanka Pruhova
Aug 9, 2016·Annals of Behavioral Medicine : a Publication of the Society of Behavioral Medicine·Sarah S JaserMargaret Grey
Aug 16, 2016·Australian and New Zealand Journal of Public Health·Jannine Bailey, Timothy McCrossin
Apr 22, 2016·The Diabetes Educator·Sue ChannonSusan Sullivan-Bolyai
Apr 2, 2014·Otolaryngology--head and Neck Surgery : Official Journal of American Academy of Otolaryngology-Head and Neck Surgery·Christian Hamilton HeidemannHenrik Hein Lauridsen
Apr 24, 2017·Current Diabetes Reports·Carrie TullyRandi Streisand
Dec 16, 2016·Diabetic Medicine : a Journal of the British Diabetic Association·A NieuwesteegF Pouwer
May 19, 2017·Journal of Developmental and Behavioral Pediatrics : JDBP·Aditi LohanAmy Mitchell
Apr 16, 2014·Otolaryngology--head and Neck Surgery : Official Journal of American Academy of Otolaryngology-Head and Neck Surgery·Christian Hamilton HeidemannChristian Godballe
Mar 4, 2018·Current Diabetes Reports·Robin WhittemoreMargaret M McCarthy
Mar 30, 2018·Journal of Diabetes Science and Technology·Anthony T VescoJill Weissberg-Benchell
Apr 24, 2018·Chronic Illness·M Anderson, M K Tulloch-Reid
Jun 1, 2015·Zdravstveno Varstvo·Tanja PateNataša Bratina
Dec 22, 2017·The Diabetes Educator·Robin WhittemoreLisa D Marceau
Dec 22, 2017·Journal of Pediatric Psychology·Jenna B ShapiroJill Weissberg-Benchell
Dec 14, 2017·Qualitative Health Research·Mette Due-ChristensenAngus Forbes
Aug 1, 2015·Journal of Health Psychology·Leehu ZysbergMor Goldman
Aug 5, 2017·Journal of Diabetes Science and Technology·Kara R HarringtonUNKNOWN T1D Exchange Clinic Network

❮ Previous
Next ❯

Software Mentioned

Scopus
PsychInfo

Related Concepts

Related Feeds

Autoimmune Diabetes & Tolerance

Patients with type I diabetes lack insulin-producing beta cells due to the loss of immunological tolerance and autoimmune disease. Discover the latest research on targeting tolerance to prevent diabetes.