Psychosocial functioning of parents of children with heart disease-describing the landscape

European Journal of Pediatrics
Jo WrayBradley S Marino

Abstract

The aim was to describe the psychological functioning of parents of school-age children with heart disease (HD) in a large-scale, transnational evaluation of parent dyads across the spectrum of cardiac diagnoses and a range of psychosocial domains. Parents of children with HD attending routine out-patient cardiology follow-up visits completed questionnaires assessing their mental health, coping, and family functioning. Parents (1197 mothers and 1053 fathers) of 1214 children (mean age: 12.6 years; S.D. 3.0 years; median time since last surgery: 8.9 years) with congenital or acquired HD from three centers each in the UK and the USA participated (80% response rate). Parents of children with milder HD demonstrated few differences from healthy norms and had significantly lower scores on measures of illness-related stress and post-traumatic stress than parents of children with single ventricle conditions or cardiomyopathy. Parents in these latter two diagnostic sub-groups had significantly higher levels of anxiety and depression than healthy norms but did not differ on other measures of family functioning and coping skills. There were few differences between parents from the UK and the USA. Agreement between mothers and fathers with...Continue Reading

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Citations

Aug 8, 2020·Cardiology in the Young·Colette GramszloErica Sood
Nov 19, 2019·The Journal of Pediatrics·Colette GramszloErica Sood
Dec 20, 2020·Heart & Lung : the Journal of Critical Care·Amy J LisantiBarbara Medoff-Cooper
Sep 11, 2020·Archives of Disease in Childhood·Aparna HoskoteKatherine Brown
Mar 14, 2021·Journal of Perinatology : Official Journal of the California Perinatal Association·Anne R WaldropYair J Blumenfeld
Apr 5, 2021·Urology·Michael J SadighianLindsay A Hampson

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