Psychosocial impact of cystic fibrosis in adolescence

Paediatric Nursing
Michele Harrop

Abstract

Over 8,000 children, young people and adults in the UK are affected by cystic fibrosis and although no cure exists, comprehensive therapy started early and administered consistently delays disease progression. This article explores three aspects of the psychosocial effects of cystic fibrosis on the adolescent/young adult: the effect on the family, the effect on relationships and adherence to treatment. Much of the early research on the psychosocial impact of cystic fibrosis on the adolescent and the family presented a dismal picture of dysfunction. More recent studies indicate that cystic fibrosis patients generally lead active, age-appropriate social lives, that good information and support can reduce negative effects on families and that treatment regimes continue to cause difficulties for young people. Further research is needed into the psychosocial impact of cystic fibrosis on the increasing numbers of young people and adults with the disease.

Citations

Oct 26, 2013·Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society·Audrey TluczekPhilip M Farrell
Jul 26, 2011·Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society·Tanja Besier, Lutz Goldbeck
Apr 2, 2014·Journal of Health Psychology·Rachael StreetKathryn Thirlaway
Aug 1, 2009·Current Opinion in Pulmonary Medicine·Lisa Saiman, Elizabeth Garber
Sep 19, 2019·Journal of Health Psychology·Jeremy K RussellDavid J Kavanagh

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