Psychosocial Intervention Programs for Parents of Children with Cancer: A Systematic Review and Critical Comparison of Programs' Models and Development

Journal of Clinical Psychology in Medical Settings
David OgezSerge Sultan

Abstract

Intervention programs have been developed to help parents cope with their child's cancer. Despite some studies reporting a high level of evidence, it is unclear how these programs build on each other. Appraising models of change is critical to advance scientific knowledge and provide evidence-based interventions. This review aims to identify existing programs, explicitly formulate their underlying models, evaluate how they translate into concrete activities, as well as identify and discuss their development process. Eleven programs based on models of change from cognitive-behavioral, systemic and counselling theories were identified. Many models included a sound theoretical framework, targeted outcomes, as well as implementation strategies. In most cases, preliminary development studies were conducted, but details were rarely provided on how development stages informed the redesign of intervention programs. Acceptability and treatment fidelity were not available for one-third of the programs. Future reports should document the development and design redesign stages prior to conducting efficacy trials, as this step would provide crucial details to critically appraise programs.

References

Aug 1, 1992·Journal of Abnormal Psychology·M CreamerP Pattison
Jan 1, 1988·The International Journal of Biochemistry·D LeRoithA Ota
Apr 1, 1988·Journal of Biosocial Science·M Masaki, A Koizumi
Jun 26, 1998·Journal of Pediatric Psychology·J E Hoekstra-WeebersE C Klip
Apr 11, 2002·Journal of Developmental and Behavioral Pediatrics : JDBP·Olle Jane Z SahlerRaymond K Mulhern
Nov 5, 2002·Nature Reviews. Cancer·Lesley Fallowfield
Sep 16, 2004·Health Psychology : Official Journal of the Division of Health Psychology, American Psychological Association·Albert J BellgUNKNOWN Treatment Fidelity Workgroup of the NIH Behavior Change Consortium
Sep 24, 2004·Journal of Family Psychology : JFP : Journal of the Division of Family Psychology of the American Psychological Association (Division 43)·Anne E KazakAvital Cnaan
May 7, 2005·Haemophilia : the Official Journal of the World Federation of Hemophilia·B RattrayG Young
Jul 20, 2005·Journal of Clinical Child and Adolescent Psychology : the Official Journal for the Society of Clinical Child and Adolescent Psychology, American Psychological Association, Division 53·Alan E Kazdin
May 25, 2006·The American Psychologist·UNKNOWN APA Presidential Task Force on Evidence-Based Practice
Nov 7, 2006·Journal of Pediatric Psychology·Kristen E RobinsonRobert B Noll
May 22, 2007·Pediatric Blood & Cancer·Anna Maria Patiño-FernándezAnne E Kazak
Aug 25, 2007·Annual Review of Clinical Psychology·Alan E Kazdin
Feb 22, 2008·Journal of Pediatric Psychology·C M Jantien Vrijmoet-WiersmaR Maarten Egeler
Oct 1, 2008·BMJ : British Medical Journal·Peter CraigUNKNOWN Medical Research Council Guidance
Nov 27, 2008·Psychotherapy Research : Journal of the Society for Psychotherapy Research·Alan E Kazdin
Jul 29, 2009·Journal of Consulting and Clinical Psychology·Rebecca E Stewart, Dianne L Chambless
Aug 19, 2009·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Sheila Judge SantacroceMargaret Grey
Aug 11, 2010·Annals of Behavioral Medicine : a Publication of the Society of Behavioral Medicine·Lynn M MartireEster M Saghafi
Nov 26, 2010·Journal of Clinical Psychology·John C Norcross, Bruce E Wampold
Jun 8, 2011·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Carrie Masia WarnerWilliam Carroll
Mar 24, 2012·Journal of Pediatric Hematology/oncology·Begül Yağci-KüpeliMünevver Büyükpamukçu
Sep 5, 2012·Journal of Pediatric Psychology·Larry L MullinsRene Y McNall-Knapp
Dec 19, 2012·Annual Review of Clinical Psychology·David H BarlowAmantia A Ametaj
Jan 30, 2013·Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology·Olle Jane Z SahlerRobert W Butler
Jan 22, 2014·Journal of Palliative Medicine·Joseph A PicoraroChris Feudtner
Apr 16, 2014·Journal of Clinical Child and Adolescent Psychology : the Official Journal for the Society of Clinical Child and Adolescent Psychology, American Psychological Association, Division 53·John F Curry
Oct 10, 2014·Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses·Wendy N GrayAhna L H Pai
Feb 3, 2015·Health Psychology : Official Journal of the Division of Health Psychology, American Psychological Association·Susan M CzajkowskiMary E Charlson

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Citations

Sep 15, 2020·Journal of Adolescent and Young Adult Oncology·Kristopher LamoreSerge Sultan
Apr 25, 2019·International Journal of Environmental Research and Public Health·Kristopher LamoreJérôme Foucaud

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