Psychosocial Patient-Reported Outcomes in Pediatric and Adolescent Diabetes: a Review and Case Example

Current Diabetes Reports
Sarah D CorathersJessica C Kichler

Abstract

The purpose of this review is to define psychosocial patient-reported outcomes (PROs) relevant to pediatric and adolescent diabetes populations. Potential domains for PROs include a spectrum of emotional, behavioral, social, physical, overall health, and/or care management areas. A literature review of potential PRO measures, selection criteria, and implementation strategies including a case example will be presented. Among the pediatric, adolescent, and emerging adult populations, research indicates a relative higher risk for distress, depression, anxiety, and eating disorders as compared to peers without diabetes. Use of PRO measures can expand providers' focus beyond glycemic control, or simply hemoglobin A1c, to better appreciate the impact of diabetes on the whole child/adolescent, and provide services that address patients' individually identified needs, which are most salient to them. Successful selection and implementation of psychosocial PRO measures should be designed to include pathways for real-time provider interaction with the patient and respective PRO data to guide clinical care.

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Citations

Jun 12, 2019·Journal of Transcultural Nursing : Official Journal of the Transcultural Nursing Society·Kawther ElissaCarina Sparud-Lundin
Sep 19, 2019·Journal of the American Medical Informatics Association : JAMIA·Shelagh A MulvaneyKorey K Hood
May 18, 2020·Current Diabetes Reports·Maartje de WitEveline R Goethals
Mar 3, 2020·Diabetes Spectrum : a Publication of the American Diabetes Association·Sarah D Corathers, Daniel J DeSalvo

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