PMID: 9192408May 1, 1997Paper

Psychosocial stress and adaptive functioning in children and adolescents suffering from hypohidrotic ectodermal dysplasia

Pediatric Dermatology
P Hummel, S Guddack

Abstract

In its fully manifest form, hypohidrotic ectodermal dysplasia (HED) leads to a typical dysmorphia of the face, referred to as "old man" facies. Few studies have been conducted on how children and adolescents deal with and adapt to the effects of this illness. The psychosocial stress and adaptive functioning of such patients was investigated by means of a semistructured interview conducted on a sample of 14 children and adolescents with varying degrees of this disease. The results revealed that adaptive functioning is not only dependent on the severity of symptoms. The child's intellectual potential and personality, how the disease is dealt with within the family, and reactions from the child's environment influence adaptive functioning in different ways.

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Citations

Dec 19, 2002·The Journal of Prosthetic Dentistry·Pervin ImirzaliogluSeda Gürsoy Haydar
Apr 27, 2012·TheScientificWorldJournal·Rolanda A MaximTimothy J Fete
Jan 29, 2016·American Journal of Medical Genetics. Part C, Seminars in Medical Genetics·Kathleen K M DeidrickTimothy J Fete
Dec 17, 2008·Journal of Oral and Maxillofacial Surgery : Official Journal of the American Association of Oral and Maxillofacial Surgeons·Robert KirmeierNorbert Jakse
Mar 6, 2010·Journal of Prosthodontics : Official Journal of the American College of Prosthodontists·Reza KhazaieWinston Chee
Aug 28, 2014·American Journal of Medical Genetics. Part a·Smail Hadj-RabiaChristine Bodemer
May 24, 2007·Journal of Esthetic and Restorative Dentistry : Official Publication of the American Academy of Esthetic Dentistry ... [et Al.]·Xiangyi HeJukka H Meurman
Dec 2, 2010·The Journal of Craniofacial Surgery·Francesco GrecchiFrancesco Carinci
Jul 17, 2003·Journal of Ultrasound in Medicine : Official Journal of the American Institute of Ultrasound in Medicine·Waldo SepulvedaPatricio Vasquez
Feb 1, 2020·Journal of Cutaneous and Aesthetic Surgery·Kirti DeoAayush Gupta
Sep 3, 2021·Cognitive and Behavioral Neurology : Official Journal of the Society for Behavioral and Cognitive Neurology·Jessica A KaczorowskiEllen Braaten

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