Public involvement and health research system governance: a qualitative study

Health Research Policy and Systems
Fiona Alice MillerWhitney Berta

Abstract

Interest in public involvement in health research projects has led to increased attention on the coordination of public involvement through research organisations, networks and whole systems. We draw on previous work using the 'health research system' framework to explore organisational actors and stewardship functions relevant to governance for public involvement. To inform efforts in Ontario, Canada, to mobilise public involvement across the provincial health research enterprise, we conducted an exploratory, qualitative descriptive study of efforts in two jurisdictions (England, United Kingdom, and Alberta, Canada) where there were active policy efforts to support public involvement, alongside jurisdiction-wide efforts to mobilise health research. Focusing on the efforts of public sector organisations with responsibility for funding health research, enabling public involvement, and using research results, we conducted in-depth, semi-structured interviews with 26 expert informants and used a qualitative thematic approach to explore how the involvement of publics in health research has been embedded and supported. We identified three sets of common issues in efforts to advance public involvement. First, the initial aim to embed...Continue Reading

References

Jun 29, 2002·Health Policy·Jonathan BooteCindy Cooper
Jan 27, 2004·Education for Health : Change in Training & Practice·B A IsraelUNKNOWN Community-Campus Partnerships for Health
Jun 24, 2004·Health Policy·Máire O'Donnell, Vikki Entwistle
Mar 15, 2005·Education for Health : Change in Training & Practice·Syed M AhmedGail Newton
Apr 9, 2005·Social Science & Medicine·J Francisca Caron-FlintermanJoske F G Bunders
Aug 31, 2010·Lancet·Sophie Petit-ZemanJohn W Scadding
Nov 20, 2010·Health Research Policy and Systems·Carla Saunders, Afaf Girgis
Oct 19, 2011·International Journal of Technology Assessment in Health Care·Sophie StaniszewskaRosemary Barber
Oct 31, 2012·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Kristina StaleyMaryrose Tarpey
Jun 5, 2013·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Nathan D ShippeeM Hassan Murad
Dec 18, 2013·Health Research Policy and Systems·Stephen R Hanney, Miguel A González-Block
Feb 27, 2014·BMC Health Services Research·Juan Pablo DomecqMohammad Hassan Murad
Jun 27, 2015·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Julia AbelsonSarah Boesveld
Jan 27, 2016·Social Science & Medicine·Bridget PrattAdnan A Hyder
Jul 1, 2017·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Svetlana ShklarovNancy J Marlett
Jul 31, 2015·Research Involvement and Engagement·Kristina Staley
Aug 8, 2018·Health Research Policy and Systems·Fiona Alice MillerWhitney Berta

❮ Previous
Next ❯

Citations

Jul 10, 2020·Health Expectations : an International Journal of Public Participation in Health Care and Health Policy·Michael LevelinkAnna Levke Brütt
Jun 24, 2020·Health Research Policy and Systems·Stephen R HanneyAnnette Boaz

❮ Previous
Next ❯

Software Mentioned

SPOR
INVOLVE

Related Concepts

Trending Feeds

COVID-19

Coronaviruses encompass a large family of viruses that cause the common cold as well as more serious diseases, such as the ongoing outbreak of coronavirus disease 2019 (COVID-19; formally known as 2019-nCoV). Coronaviruses can spread from animals to humans; symptoms include fever, cough, shortness of breath, and breathing difficulties; in more severe cases, infection can lead to death. This feed covers recent research on COVID-19.

Blastomycosis

Blastomycosis fungal infections spread through inhaling Blastomyces dermatitidis spores. Discover the latest research on blastomycosis fungal infections here.

Nuclear Pore Complex in ALS/FTD

Alterations in nucleocytoplasmic transport, controlled by the nuclear pore complex, may be involved in the pathomechanism underlying multiple neurodegenerative diseases including Amyotrophic Lateral Sclerosis and Frontotemporal Dementia. Here is the latest research on the nuclear pore complex in ALS and FTD.

Applications of Molecular Barcoding

The concept of molecular barcoding is that each original DNA or RNA molecule is attached to a unique sequence barcode. Sequence reads having different barcodes represent different original molecules, while sequence reads having the same barcode are results of PCR duplication from one original molecule. Discover the latest research on molecular barcoding here.

Chronic Fatigue Syndrome

Chronic fatigue syndrome is a disease characterized by unexplained disabling fatigue; the pathology of which is incompletely understood. Discover the latest research on chronic fatigue syndrome here.

Evolution of Pluripotency

Pluripotency refers to the ability of a cell to develop into three primary germ cell layers of the embryo. This feed focuses on the mechanisms that underlie the evolution of pluripotency. Here is the latest research.

Position Effect Variegation

Position Effect Variagation occurs when a gene is inactivated due to its positioning near heterochromatic regions within a chromosome. Discover the latest research on Position Effect Variagation here.

STING Receptor Agonists

Stimulator of IFN genes (STING) are a group of transmembrane proteins that are involved in the induction of type I interferon that is important in the innate immune response. The stimulation of STING has been an active area of research in the treatment of cancer and infectious diseases. Here is the latest research on STING receptor agonists.

Microbicide

Microbicides are products that can be applied to vaginal or rectal mucosal surfaces with the goal of preventing, or at least significantly reducing, the transmission of sexually transmitted infections. Here is the latest research on microbicides.