Public perception of prenatal genetic testing: arguments put forward by the public during a participatory policy project in the Netherlands

Community Genetics
Tjard de Cock BuningJoske F G Bunders

Abstract

In early 2002, the Dutch Ministry of Public Health, Welfare and Sport piloted the application of an interactive process to policy development in the field of medical biotechnology. In such an approach, relevant societal actors, including the public at large, are actively involved in an open exchange, planning, action and reflection process. This paper reports on the findings of one of the activities of the ministry within this initiative, the consultation of the public on dilemmas with respect to prenatal genetic testing by means of citizen panels. Participants were asked to reflect on questions with respect to whether and under which conditions pregnant women may have freedom of choice to use prenatal genetic testing. In a structured way, arguments in favour and against various positions were identified and prioritized. The paper closes with a discussion on the implications of the use of citizen panels and summarizes the 2 actual policy changes of the ministry that resulted from this process.

References

Oct 1, 1987·American Journal of Medical Genetics·J R SorensonT C Heeren
Oct 1, 1995·Journal of Medical Genetics·M DecruyenaereH Van den Berghe
May 1, 1996·Journal of Clinical Epidemiology·P Dolan
Nov 30, 1999·American Journal of Public Health·A Asch
Aug 18, 2000·Quality Management in Health Care·K L KirschnerC J Gill
Oct 20, 2001·Bioethics·Michael Norup
Feb 24, 2006·Community Genetics·Neil A Holtzman

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Citations

Apr 22, 2011·Sociology of Health & Illness·Richard Tutton, Barbara Prainsack
Dec 12, 2012·Indian Journal of Public Health·Sanjay K RaiRavi Prakash Upadhyay

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