Public perceptions of changing the terminology for low-risk thyroid cancer: a qualitative focus group study

BMJ Open
Brooke NickelKirsten McCaffery

Abstract

To investigate public perceptions of overdiagnosis and overtreatment in low-risk thyroid cancer and explore opinions regarding the proposed strategy to change the terminology of low-risk cancers. Qualitative study using focus groups that included a guided group discussion and presentation explaining thyroid cancer, overdiagnosis and overtreatment, and proposed communication strategies. Transcripts were analysed thematically. Sydney, Australia. Forty-seven men and women of various ages from a range of socioeconomic backgrounds with no personal history of thyroid cancer. Participants had low pre-existing general awareness of concepts of overdiagnosis and overtreatment and expressed concern regarding this new information in relation to thyroid cancer. Overall, participants understood why the strategy to change the terminology was being proposed and could see potential benefits including reducing the negative psychological impact and stigma associated with the term 'cancer'; however, many still had reservations about the strategy. The majority of the concerns were around their worry about the risk of further disease progression and that changing the terminology may create confusion and cause patients not to take the diagnosis and i...Continue Reading

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Citations

Feb 27, 2020·Cancers·Jacqueline TrouillasChiara Villa
Nov 27, 2020·Thyroid : Official Journal of the American Thyroid Association·Patti ShihStacy M Carter
Dec 18, 2021·Thyroid : Official Journal of the American Thyroid Association·Vikas MehtaGregory W Randolph

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