Qualitative Evaluation of Pediatric Pain Behavior, Quality, and Intensity Item Candidates and the PROMIS Pain Domain Framework in Children With Chronic Pain

The Journal of Pain : Official Journal of the American Pain Society
C Jeffrey JacobsonEsi Morgan DeWitt

Abstract

As initial steps in a broader effort to develop and test pediatric pain behavior and pain quality item banks for the Patient-Reported Outcomes Measurement Information System (PROMIS), we used qualitative interview and item review methods to 1) evaluate the overall conceptual scope and content validity of the PROMIS pain domain framework among children with chronic/recurrent pain conditions, and 2) develop item candidates for further psychometric testing. To elicit the experiential and conceptual scope of pain outcomes across a variety of pediatric recurrent/chronic pain conditions, we conducted 32 semi-structured individual and 2 focus-group interviews with children and adolescents (8-17 years), and 32 individual and 2 focus-group interviews with parents of children with pain. Interviews with pain experts (10) explored the operational limits of pain measurement in children. For item bank development, we identified existing items from measures in the literature, grouped them by concept, removed redundancies, and modified the remaining items to match PROMIS formatting. New items were written as needed and cognitive debriefing was completed with the children and their parents, resulting in 98 pain behavior (47 self, 51 proxy), 54 ...Continue Reading

References

Feb 6, 2007·The Journal of Pain : Official Journal of the American Pain Society·Jessica W GuiteJohn B Rose
Apr 20, 2007·Medical Care·Darren A DeWaltUNKNOWN PROMIS Cooperative Group
May 29, 2007·Arthritis and Rheumatism·R K SaurenmannE D Silverman
Jun 20, 2008·The Journal of Pain : Official Journal of the American Pain Society·Patrick J McGrathUNKNOWN PedIMMPACT
Aug 18, 2009·Pain·Dennis A RevickiFrancis J Keefe
Jun 18, 2010·Pain·Dagmar AmtmannJin-Shei Lai
Jul 16, 2010·The Journal of Pain : Official Journal of the American Pain Society·James W VarniDarren A Dewalt
Oct 22, 2010·Pain·Anne M Lynch-JordanKenneth R Goldschneider

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Citations

Mar 9, 2017·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Hilary BertischDavid S Tulsky
Jul 19, 2018·The Clinical Journal of Pain·Anne M Lynch-JordanSusmita Kashikar-Zuck
Jun 25, 2019·Journal of Pediatric Psychology·Christopher B ForrestUlrike Ravens-Sieberer
Sep 28, 2016·Plastic and Reconstructive Surgery·Kavitha RanganathanJennifer F Waljee
Sep 16, 2017·Pain Research & Management : the Journal of the Canadian Pain Society = Journal De La Société Canadienne Pour Le Traitement De La Douleur·Rebecca Rachael LeeLis Cordingley
Oct 23, 2020·Arthritis Care & Research·Morgan DaffinSusmita Kashikar-Zuck
Nov 18, 2020·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·Adam C CarleChristopher B Forrest
Mar 20, 2021·Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation·L CoombesR Harding

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